What’s this thing called “Vertigo” anyway?

vertigo caught in motion
me during a vertigo attack – photo by w. holcombe

There are different definitions for the word “vertigo” (noun – ver·ti·go \ˈvər-ti-ˌgō\)

Webster’s Dictionary defines vertigo as:
a feeling of dizziness caused especially by being in a very high place

1a : a sensation of motion in which the individual or the individual’s surroundings seem to whirl dizzily
1b : a dizzy confused state of mind

On American Family Physician’s site I found a great article, Dizziness: A Diagnostic Approach.  It describes all kinds of Dizziness, the different causes and treatments.

In it they describe vertigo as : (A) False sense of motion, possibly spinning sensation.

I could go on and give you different definitions, many would be a bit different from others, but the main thing they have in common, one feels as if they are in motion.

Vertigo is not just dizziness, it is a type of dizziness, just as lightheadedness, and disequilibrium are but it is more than what most people consider dizziness.

Vertigo is the sense of motion.  Most often it includes seeing a spinning sensation, it also include other feelings of motion including, a sense of falling, rising or being jerked in one direction.  These are not encountered as often as rotational vertigo. (Understanding Vertigo and What to do if you have it. – The Washington Post – 2014)

I thought I’d take this opportunity to tell you, as best I can, how vertigo feels to me.

I have rotational vertigo (seeing my surrounding spin around), and motion vertigo (I often feel like I’m moving when I’m not.  I will feel like I’m suddenly free-falling, or being jerked around.)

The best way I know to describe rotational vertigo is to give you an example most people understand.  Remember when you were a kid and you used to spin around and around until you fell down seeing the world spin around you, (if you don’t remember this, or have a loved one with vertigo, I encourage you to do it now to have a sample of what we see).  Now that you have that image, imagine seeing that but it doesn’t stop.  When you just spin around the spinning sensation stops in a few seconds, for me it can last a few minutes to a few days.  The average is about 4 hours.  When I have this type of vertigo attack I often get very sick.  Imagine motion sickness times 1000.  I will throw up for hours, it can get so violent that I will lose control of every bodily function.  It is horrific.

I used to have other motion vertigo every once in a while, now it comes much more often.  I often feel like I’m in motion when I’m not.  I’ll feel like I’m on a boat, I’ll even feel like I’m walking around while I’m sitting still.  In the past year I’ve started having vertigo that makes me feel like I’m being thrown around the room (the first time this happened I thought I was dying, after an Ambulance ride and spending over 9 hours in the Emergency Room I was told this is a different form of vertigo.  (freaky)  I’ve also started having feelings as if I’m free-falling, I can only imagine it’s how one would feel if they stepped into an open elevator shaft.  This is one of the most frightening things in I’ve encountered.

Rotational Vertigo is not always at the same speed.  Sometimes I see my surroundings spinning by in just a blur, during these attacks I always get sick.  This will include hours of vomiting and sometimes I will lose all control of my bodily functions.  It’s horrific.  Other times my surrounds will spin by at a much slower rate.  After having rotational vertigo for so long many of my attacks are not as horrific.  I don’t panic now.  I will stay as calm as possible and just watch the world spin by, mostly I’m really bored.  This is the time when my mindfulness practice really comes in handy.

I’ve learned if I focus on something about 12 – 18 inches from me I often don’t see things go by quite as fast.  If the spinning isn’t too fast I will watch TV reading the captions.  For some reason if I concentrate on the captions the vertigo slows down.  This does not happen if I try to read anything else, that just makes me sicker.

I used to throw up no matter what.  I may have mentioned this before, maybe not, but I’ve had 2 doctors tell me that if medicinal marijuana were legal they’s prescribe it for me.  So I’ve tried it to see how it helps.  I can honestly say that I believe it has stopped me from going to the ER many times for dehydration.  It stops me from throwing up.  That is amazing to me.  I very rarely throw up now.   It can also calm down an attack if I use it fast enough.  (if you’d like to know more about how I use this to help, feel free to ask, I will say that I never feel high, I use very little, just enough to help me.)

Now, do you understand more about what Vertigo is and what my vertigo feels like?

If you suffer from vertigo, do you have similar experiences or is your experience different?

The Fay Farm CBD Muscle Rub – Review and Give Away!

fay farm 1

“This is a sponsored post for The Fay Farm CBD Warming Muscle Rub. I have been compensated through the Chronic Illness Bloggers network. All opinions remain my own and I was in now way influenced by the company.”

I’ve never had a review or give away on my blog before, but when The Fay Farm asked me to try their Warming CBD Muscle Rub I thought, “Hey, that sounds really interesting!  I bet my readers would love it.”

The rub was created by the co-owner for his mother who has Rheumatoid Arthritis, he told me that has allowed her to sleep through the night.  I thought that was pretty cool, and so very nice.

I received my package a little over a month ago and I’ve been giving the Warming CBD Muscle Rub a try.  I had been out for a bit the day I got the package and my neck was causing me a lot of pain, so I decided to try it out right away.  I was very shocked when I put it on and the pain got better.  Did it go away?  No.  But it got better!  That’s a big thing for me.

I have degenerative discs in my neck, it has really been acting up lately and the pain from it has been more intense than normal.  The pain is sharp, burning, stinging; all kinds of fun.  It also causes the muscles surrounding that area to become very tense, of course intensifying the pain.  The rub worked very well on the muscle pain, the pain right at the discs bit.

CBD oil is a key ingredient in cannabis (marijuana). Unlike THC (the ingredient in cannabis that gets you “high”), CBD does not cause a ‘high’. While this makes CBD a poor choice for recreational users, it gives the chemical a significant advantage as a medicine.  CBD can come from regular cannabis plants or plants harvested for hemp.  The CBD oil that comes from hemp is legal. The CBD oil that comes from regular cannabis plants is not legal in most states.  The CBD oil found in The Fay Farm Warming Muscle Rub is hemp oil.  Read more about Hemp Oil, here.

The organic ingredients are Sunflower, castor, herb- infused olive oil, beeswax, shea butter, menthol, camphor, 50mg CBD oil, cayenne pepper, arnica, essntial oils of rosemary, eucalyptus, peppermint, ginger, cassia, and clove.

From the ingredients I saw that most have some properties that can help relieve pain, like arnica and the cayenne pepper, ect.  I’ve tried Arnica and things like Icy Hot, Capsacium cream or Tiger Balm… and thought they didn’t help as much as this CBD Muscle Rub..  During the past month I’ve tried Arnica and Tiger Balm again just to make sure, and yes The Fay Farm’s Warming CBD Muscle Rub does help me more than either of those.  I even tried my prescription Voltaren Gel and felt the warming CBD rub helped more. I can really smell the cloves and other essential oils.  Some might find the smell a bit strong, but I found it much more pleasant than things like Icy Hot.  (I have to note here, I’m very sensitive to smells, this is a bit strong to me, but it isn’t artificial or really stinky, I haven’t had a problem with it.  Hubby says it’s a light sent, he also agrees it’s not offensive.  We both kinda like the smell.)

fay farm open

The rub is softer in viscosity than I thought it would be just looking at it. I thought it would have the consistency of petroleum jelly, but it is softer, smoother.  When I first got it I put my fingers in to get some and I got a lot more than I intended.    Now that I know the consistency it is very easy for me to use.  I’m glad it doesn’t come in a tube because I never feel like I get all of the ingredients out of a tube, and if I happen to get too much on my finger I just scrape my finger over the side and put it back in the tin.  You can’t do that with a tube.

Will it work for you, well only you can decide that, and since you are one of my readers you can receive 10% off your entire order and free shipping (in the U.S. only) by mentioning “Picnic” or “Ants” in the comments when you order you products!  (When you add everything you want in your basket, just add ‘picnic’ or ‘ants’ in the comment section of the order form and you will get 10% off.)  Yes, you get to take 10% off your whole order, not just CBD products, and the offer doesn’t expire.  How cool is that??

fay farm 3

 

They sent me a normal size and 2 sample sizes so I thought I’d share with 2 of you.  I’m giving away two (2) .5 oz sample containers of The Fay Farm’s Warming CBD Muscle Rub.  If you’d like to receive one of them, just leave me a comment and I’ll randomly pick the 2 names. (if you’d like to leave a comment but don’t want to enter, please let me know) That’s all there is to it.  You have until April 29th to enter and I’ll announce the winner on May 1st.  (sorry but this give away is only available to those in the continental US.)

I’ll also send the winners an email.  Do not leave your email in your comment, I will get it from the information you supplied the first time you made a comment.  If you don’t get an email, you can always check back here.

If I do not hear from the winners by May  6th, alternate winners will be picked.

I hope you enjoy the rub as much as I have, or more!

 

I Give Myself Permission to …

I’ve been participating in a Chronic Pain and Illness photo project.  I participated in the same group last year, you can see those photos on these posts: Chronic Pain/Illness Photo Project, Chronic Pain/Illness Photo Project 2015 Week 2 , and Chronic Pain/Illness Photo Project 2015 Week 3.  This year I’m sharing a few photos here and there, not the whole project.

I’d love to hear your take on this topic.  What do you give yourself permission to???

Today – I give myself permission to Cry.

My x-rays showed more degeneration in my neck. C5-C6
The pain is intense. It just hit me that this is only going to get worse. The pain will always be there.

My father is in the hospital. I can’t go. I can’t ever go.

Today I give myself permission to cry.

(photo taken today, I manipulated it with photoshop, but the tear is real.)

crying

STOP

This photo symbolizes what I need to do…
STOP.
Stop and listen to what my body says.
Stop and look, really look at everything.
Stop and smell, and see, and taste…
Stop and breathe.
Remember to STOP and be mindful.

stop sign

this was part of the Chronic Pain and Illness Photo Project 2016

The theme for today was Mindfulness.

Grief and Acceptance

When people think of grief they often think of death, they don’t think about grieving over other significant losses.  Those of us who have had major losses due to chronic illness know all too well that we grieve those losses.

The five stages of normal grief that were first proposed by Elisabeth Kübler-Ross in her 1969 book “On Death and Dying” are: Denial, Bargaining, Depression, Anger, and Acceptance.  Kübler-Ross describes these stages as being progressive, you needed to resolve one stage before moving on to the next.  This is no longer thought to be true.  It is accepted that most people who have loss go through states of grief but it is not linear nor is it finite.

The 

Eckhart Tolle Quote

Often people think of acceptance as being okay with what happened.  That is not the case. Most people never feel completely okay about a great loss.  Acceptance is about accepting a new reality. This is the way life is now, it is the new norm, our lives have been forever changed and we must adjust accordingly.  At first finding acceptance could be just having more good days than bad.  We can never replace what has been lost.  However, we must listen to our needs; we change, we evolve, we accept.

Once you have reached a good level of acceptance this doesn’t mean you can’t feel sad again.  We are constantly reminded of our losses, when these reminders arise we can find ourselves feeling grief again.  It’s at these times that our acceptance is most helpful.  We may feel our losses, but we know there is life after.

I accepted my losses long ago, however, feelings of grief do come flooding back from time to time, especially if I lose something else.  When one is chronically ill, we often find we lose more things as time goes on, even when those losses have nothing to do with our illness it can bring back all the emotions from our previous losses.

For example, in the last 2 years I’ve had a number of new losses.  We had to move because my husband found a job in a new city.  This move caused me to lose my home, my neighbors, more friends, and my doctors.  Then a new diagnosis that causes more pain and loss of range of motion was another huge loss.  The losses just seemed to keep adding up.  I have more grief that I have to work through.  Simply because we dealt with our previous losses does not mean our new losses hurt less, or that we don’t need to grieve.  However, it does mean that we now know that acceptance will help us deal with our losses, and give us the ability to move on.

I should point out here that prolonged intense grief can produce a physical or Prolonged Grief Disorder.  “Prolonged grief disorder require bereaved individuals to have severe levels of yearning, and five of the following nine symptoms for ≥6 months post-loss: disbelief and bitterness over the loss, confusion about one’s identity, an inability to trust others, numbness … and feeling that life is empty and meaningless since the loss, difficulty accepting the loss and moving on with life, and feeling stunned by the loss.” (Holly G. Prigerson, Paul K. Maciejewski – 
 Based on numerous findings of maladaptive effects of prolonged grief, diagnostic criteria for Prolonged Grief Disorder have been proposed for inclusion in the DSM-5 and ICD-11. 
There is a great article at Psych Central on the 5 Stages of Loss and Grief, here you can also find a quiz to help you decide if you are suffering from complicated grief.
If you feel you are suffering from complicated grief I urge you to seek professional help.  It can get better.

#WorldBipolarDay 2016

#WorldBipolarDay is celebrated on Vincent VanGogh’s Birthday, who is believed to have had #bipolar disorder.

stary night

This year’s #WorldBipolarDay “theme is “More Than A Diagnosis”, as we want to show the public that individuals who live with bipolar disorder are more than their diagnosis; they are capable of living full, successful lives, despite and in spite of their diagnosis.” – See more at: http://ibpf.org/wbdresources#sthash.TlZ5dveb.dpuf

I have bipolar disorder, formerly known as Manic Depression.  It is characterized by periods of extreme highs and lows that interfere with some or all aspects of a persons life.

According to the National Institute of Mental Health there are an estimated 5.7 million people 18 and over and and 750,000 children in the US affected by this disorder.

The lows include extreme depression.  Sadness most of the time, changes in sleep paterns, appetite and possibly weight. There is a feeling of worthlessness and guilt and an inability to find enjoyment.  A person often has thoughts of death or suicide.

The highs, or manic part of the cycle, include increased levels of self esteem and grandiosity.  The person seeks out pleasurable and risk taking experiences often to the point of danger, including  sexual prowess,  drug and alcohol abuse and shopping sprees.  Mania can also include sudden outburst of violent and unpredictable behavior.

Bipolar Disorder can be treated most often with mood stabilization medications and psychotherapy.

Like all illnesses following a wellness routine is essential.  Stay mindful of your moment to moment experience and recognize the signs of mood swings early.  Be sure to get enough rest, eat well, exercise, take your medications as prescribed, and develop a strong support network.  Often these steps are very hard to do, but it is essential that we take care of ourselves the best we can.

I have never hidden my diagnosis.  I know there are many people who feel they can’t share their diagnosis due to prejudice against the mentally ill.  We should all fight to stop the stigma surrounding Mental Illness.

Always remember we are #MoreThanADiagnosis.  I am a friend, wife, artist, blogger and more.  I am creative, intelligent, loving, compassionate and much more.

The people at the International Bipolar Association “…encourage people who live with bipolar disorder to remember that they can accomplish great things even though they have been diagnosed with bipolar disorder, and to remind them that there is a very supportive community out there for them to reach out to.”

#WorldBipolarDay, all day.

Happy Birthday Vincent!

 

 

I didn’t expect…

Sometimes you wake up and think it’s going to be a great day, and it isn’t.  Sunday was that kind of day for me.

First thing I cuddled with hubby when I woke and had a silly dog jumping on us all excited and playing, so waking up was loving and fun.  Soon that changed.

I’m not sure what the first thing was but the day became full of petty little arguments and bad feelings.  We would disagree, apologize then something else would happen and we’d disagree again, or we were just very short with each other.  I know I spent most of the day in a huff, or tears.

I tried to talk about what was discussed in my last therapy session….loss….and I got very emotional (read sobbing like a baby).  He did not react like I wanted.  Notice what I said, I felt he was in the wrong because he didn’t behave like I wanted, like I expected him to.  So who’s at fault there?  I think that would be me.  We aren’t hurt by people, we are hurt by our expectations of people.  And I think that is how the rest of day kind of played out.  We didn’t act the way the other person wanted, or expected and that caused bad feelings.

equanimity 6

This can happen with anyone.  If I admit it, that is what happened when I felt abandoned by my friends when I got sick.  I was so hurt, so angry, they didn’t react the way I expected.  This caused all my unhappiness.  That is why I was so hurt.  My friends did not react the way I expected.  What did I expect?  Visits, talks, help, I expected this and more.  People aren’t always going to do what we expect.  It doesn’t make them bad people.  We don’t know the reasons.  Perhaps my illness brought back bad memories, or fear over their own health,   Some people simply don’t know how to be a friend during these times or they don’t really want to be.  We have to accept this.  More than anything we need to understand that the hurt comes from our expectations, not from the people.  Does that make it hurt less?  Sometimes.  When a person I’ve loved for years and years disappeared after I got sick, it hurt.  It hurts more when I know I was there for the person when they needed me.  However, their need ended, there is no end in sight for my needs.  I will always be different than I used to be.  That’s a hard thing for any relationship to endure.  We loose relationships for a number of reasons, we fight, we move, we change jobs….  Not all relationships stay in our lives.  Things change.  We can look at friends we’ve lost since our illness took hold and think, “they showed their true colors”, “they weren’t real friends”… The truth is, they aren’t what we expected them to be and it is that expectation that causes us pain.

I can hear some of you saying, “They abandoned me, shouldn’t I be hurt?”  I’m not saying it won’t hurt, what I’m saying is, we often bring more hurt upon ourselves than is needed.  We have to let it go.  Did the fact that they are no longer in our lives negate all the good times we had?  I hope not.  It changes how we will interact with them in the future.  We’ve changed, they have changed, the relationship changed.  That change may be that it is over.  It may be that the relationship becomes something different from what it was before, we have to decide if it is worth it.  We can have bad feelings about this, but it is our decision whether to hold on to these feelings or let them go.  I try hard to let them go, to find equanimity.  Do I always succeed?  NO.  Sometimes the hurt comes back to the surface, I think that’s a part of grief.  But now I can sit back and think, why is this bothering me so much?  I always come back to the same thing, I want it to be different than it is.  My wants are causing me harm.

Not everyone has to understand what I’m going through, and not everyone has to be there for me.  It is a great feat to be able to accept a person for how they are, even when they let you down.  I’ve decided to let go of the past relationships that didn’t work.  I work on relationships with people who understand my limitations and are willing to work on our relationship the way it is now.  I don’t have many friends from before.  I have made a number of friends on-line since I’ve gotten sick, and lost my hearing.  Due to my limitations, I haven’t been able to make friends outside of the house, maybe that will happen in the future, but I’m okay with that.  I will continue to nurture the relationships I have and focus on these things.

When I got sick most of my friends were starting a family.  I had many friends who were pregnant at the same time the year before I got really sick.  Keeping up with me kind of went by the wayside.  They had a new life, one that would have been new if I were sick or not.  Our friendships would have changed.  Would they have survived if I hadn’t gotten sick?  Probably, at least for longer than they did.  Things changed.  I could no longer nurture the relationships the way I had before, my friends couldn’t find a way to bend to my new limitations.  Is there hard feelings?  I’d lie if I said they aren’t ever there, but for the most part, I’ve found peace with this.  Realizing that my pain comes from me, makes it easier to have equanimity in this situation.

Something else I noticed, when I tried to attend a few gatherings with my friends after I’d been sick for a while, I realized, I had nothing to say.  I used to be a social butterfly, always being able to have conversations with anyone.  After getting sick my world shrank, I rarely go out other than go to the doctors.  My friends still worked, ran around with their kids, and had rich social lives; my life revolves around my health.  That doesn’t give us much to talk about.  I wanted to hear all about their lives, but I had nothing to contribute to the conversations.  I was uncomfortable, and I made others uncomfortable.  Conversations were forced.  We had changed.  The fact that our friendships didn’t survive doesn’t mean either of us are bad people, we grew apart, as many people do.  When you become chronically ill to the point that your life changes so dramatically, it forces all of your relationships to change in a very short period of time.  Suddenly I didn’t have hardly anything in common with my core group of friends.  Normally if relationships change it takes time,  If you lose a relationship it doesn’t normally come in a mass exodus.  That is exactly what happens to many who are chronically ill.  We don’t see this as a natural progression in a relationship, we see this as abandonment.  It hurts much more than when you lose one friend because of something, you are suddenly losing many friends.  When I realized things change no matter what, and I will never know just how they would have changed without me getting sick, it helps me accept these things.

I realize now how much relationships change no matter what, and how much we need to nurture a relationship to keep it alive.  I hope this helps me to be a better friend and find compassion for others and myself when dealing with changing relationships.

 

Equanimity Quotes

I am in constant search for equanimity.

The quotes on this page remind me what equanimity means and how to cultivate it.

equanimity

toni bernhard equanimity quote

equanimity quote 2tonibernhard.comquote

equanimity quote 3 equanimity quote 4 equanimity quote 5 equanimity quote expect

 

Finding equanimity when chronically ill can be a challenge.

How do you find an inner calm while being chronically ill?

Out Of The Darkness

abstract 2 (1)
In the Swirl, by w. holcombe

I have Bipolar I, that means that I have the highs (mania) and the lows (depression) that go with Bipolar.  I’ve been mostly stable for the past 20 years.  However, for over 2 years I’ve been fighting depression pretty hard.  I’ve been on different medications, but I was not feeling better.  I kept thinking it was everything that was happening in my life.  Having vertigo almost every day, losing more of my independence, moving so hubby could have a job after being laid off for over a year, having to have my hip replaced due to Avascular Necrosis, well you get the picture.

I saw a new psychiatrist last month, he took me off of one antidepressant that obviously wasn’t working and put me on another medication.  It is like a veil lifted from over me, the darkness has given way to light.  I no longer cry every day.  I’m feeling hopeful. I feel like me.  OK, now I’m going to cry, from from relief and happiness.

My new psychiatrist told me something interesting, he said that often later in life a person with Bipolar I doesn’t have as many highs they have more depression. (I’m 52, I’ve shown signs of Bipolar since I was a child.)  So he so he decided to put me on a drug that is for Bipolar Depression.  The drug is is “a psychiatric medication that belongs to the class of drugs called atypical antipsychotics. It works by helping to restore the balance of certain natural substances in the brain.”  It has been a month and I’m amazed at how much better I feel.  Even when things have happened that would have upset me, I’ve handled it with ease.  How cool is that?

I’m so very grateful that someone and something was able to help.

I haven’t mentioned the names of any of the drugs because I don’t want anyone to think I’m advertising for it.  If you want to know, I’ll be happy to tell you in a comment.

today is a good day.

one moment at a time.

Can Cannabidol help the NFL?

I haven’t mentioned medical marijuana on my blog, mainly because it isn’t legal in my state.  However, cannabidiol (known as CBD) is legal in the US. (at least everywhere I know of)

The following quotes are from Win The Bright Lights Fade web page on Realm of Caring’s web site.

“CW Botanicals, a pioneer in hemp oil therapy, originally developed Charlotte’s Web (a hemp-based oil rich in cannabidiol, a non-euphoric cannabinoid) as a natural progenitor for overall brain health. Containing no more THC (the chemical that causes the psychotropic “high”) than the average hemp granola bar, their hemp oil delivers precise levels of cannabinoids, naturally occurring compounds that interact with neuroreceptors in the brain and the endocannabinoid system to regulate processes such as appetite, pain sensation, mood, and memory.”

“A recent study conducted by the Department of Veterans Affairs and Boston University shows 96% of former NFL players suffer from the neurodegenerative disease known as chronic traumatic encephalopathy (CTE). CTE is widely believed to stem from repetitive trauma to the head and can lead to conditions such as memory loss, depression and dementia.”  (this was brought to the public’s attention with the movie Concussion.)

“The Realm of Caring Foundation (RoC) is launching When the Bright Lights Fade, a campaign to raise funds for a series of studies exploring how the use of cannabinoids, specifically cannabidiol (known as CBD), can help treat and prevent the onset of symptoms associated with CTE and traumatic brain injury.”

About me and cannibus….I just ordered High CBD oil to use for pain control.  It takes a little while to get the full effect as soon as I know if it is going to work, I’ll post an update.  I have degenerative arthritis in my neck.  I can’t take traditional pain medications and most have undesirable side effects for almost everyone I know.  I am hoping this alternative will help with the pain and not cause me any ill effects.

Today I received a sample of The Fay Farm’s CBD Warming Muscle Rub.  I will write a review of this soon.  I’ve used it once and was surprised at how much it helped with my pain.  I want to give it more time before posting my review.

For the past year I’ve been using cannibus to control the nausea and vomiting during a vertigo attack.  I use it when I first feel the vertigo start and it has helped greatly.  Before using this I was taken to the ER a number of times because the vomiting was so severe I would become dehydrated and traditional antiemitics do not work for me during this time.  I feel this also helps to slow or stop a vertigo attack before it gets bad.  (yes, my doctors know I use this, I’ve had 2 say if it was legal in this state they would prescribe it, that’s why I started using it.)  I have do not use enough to get “high”, if I did I’m afraid I would have a vertigo attack because of it, therefore it does not help me with pain.  I am hoping as I start taking the cannabidiol it will help with the nausea and reducing my vertigo atacks all the time so I don’t have to use cannibus at all.  Again, something I will update on in the future.