Starting on April 26th, I’ve been participating in a Chronic Pain/Illness Photography Project on Facebook. It is a closed group, but I wanted to share my photos here. By the way, if anyone wants to join the group, you can enter at any time. You can complete the previous projects if you would like, or you can start of where we are now. So far, it’s been a lot of fun, and a lot of support and camaraderie between between people who “get it”.
Many of these photos my long time readers may have seen. Some are photos of my artwork. (I can’t really get out and create many new photos right now since I’m recovering from hip replacement surgery.)
Day 1 – Hope
I made this for one of my doctors. She gives a lot of people hope. Unfortunately her treatment didn’t help me for long, but I always have hope, not necessarily for a cure…..Hope springs eternal.
Day 2 – Loss
This photo represents losing my hearing, and much of my balance due to one of my illnesses, Meniere’s Disease.
manipulated photo –
by w. holcombe
Today I got my bandage off from my hip replacement, all looks good there! You can’t tell in the picture, but I have 6 stitches you can see, but mostly I’ve been glued together, it looks pretty cool.
I haven’t felt good today. The nerve in my back is acting up and my leg is in a lot of pain. I didn’t sleep much last night.
My monkey is guarding my hip that was just operated on so my dog or cat can sit on my lap. In this photo, Kiki is keeping me company. We rescued Kiki right when my hip/back started hurting. The doctors thought I’d just strained it when we moved. I had no idea I’d be hip replacement surgery just 7 months later because my femur head was collapsing because it was dying. Avascular Necrosis sucks. and mine was caused because of over use of prednisone. Doctors caused this disease by treating other diseases I have with too many steroids. If I’m lucky it won’t attack my other large joints. I’m 51, in the last 3 years, I’ve gotten 2 artificial ears (Cochlear Implants) and an artificial hip….no metal detectors for me!! haha.
I’m not complaining, honestly….it’s just the way it is.
and when my hip heals I’ll be able to walk!!
Some days are better than others….this day was a rough day. Taking the photo helped me get part of those feeling out, and helped me explain them to others.
I still have a hard time with my cochlear implants at the time. My hearing isn’t supposed to fluctuate with them, but it does…a lot! I’m lost, often. People don’t understand why I can’t hear when I have these devices. For those who don’t know, when someone has a hearing aid or other hearing device, it does NOT allow you to hear like a normal person. We often miss a lot. Often HOH/Deaf people won’t tell you they are having a hard time hearing.
I speak up, but it’s amazing how many hearing people don’t hear me. 🙂
Day 5…Tool Kit.
(sorry I’m a day late, yesterday I had a 12 hour vertigo attack…yuck….happy I wasn’t alone, and the violent spinning didn’t last long, I spent most of the time in slow spins…it’s still miserable, but it could have been much worse!) I have a few tool kits, emergency kits…..I believe in being prepared. smile emoticon This is my medication kit.
Top left – all closed up and ready to go. Top right – top part is open, this is where we store my shots and things that are needed for that, and other little things. Plus my med list, with all meds I take listed, pharmacy, prescribing doctor…ect. I also have this list with me in my wallet too. (this includes supplements and everything) Bottom left – bottom part of container is open and top of pill bottles showing…..the “A”s stand for A.M. or Morning, “P” is P.M. or Evening, AP are pills to be taken in the Morning and Evening. If there is a number on the top then I take more than one. I line all of these up and fill up my pill boxes…you can see those on top of my medicine box Bottom Left. I have two morning boxes because I have to take 2 pills before breakfast and the rest after breakfast.
There’s more to keeping up with my meds, but that’s my medicine box. If I’m going out of town for more than a couple of days, I just grab my box. It really has helped me to stay on track, and know when I need to refill my meds, to buy more supplements….ect. It also helps me keep everything in one place. I love my medication kit.
So this is ONE of my tool kits.
One day after hearing me talk about how hard I had been fighting, a fellow Meniere’s patient told me that perhaps I should learn to walk with old Mr. Meniere’s instead of fighting him so much all the time. I had never even thought of that. I knew this disease had no cure, but it never occurred to me to not fight it tooth and nail. Suddenly it hit me, I had to accept it as part of me. I can’t get rid of it, some days may be better, but it will always be there. I accepted it. Once I did, things got much easier. I have a number of other illnesses, I’ve accepted them all. Meniere’s Disease was the hardest to accept….it comes packed with a lot of stuff….and mine is a very complicated case. (my doctors at Duke now say I have “more than Meniere’s”, they have no idea exactly what I have. I have a several complicated vestibular disorders.)
I drew this little doodle one day to show I think I’m perfect just the way I am.
Day 7 – Grieving:
This was a hard subject for me to figure out a photo for. I kept thinking of things more suited for loss. I wanted to show something that worked more for my grief over all the things I’ve lost…. I came across this entry in my journal, and a photo of a flower I took that I think work fairly well.
Here are the words on the journal page, I’m sure you can’t read them….
The tears have been shed.
The lines have been drawn.
Do we dare to cross.
Do we dare to dream again.
The tears have flowed line rivers down our face.
The mourning continues.
How do we hope again.
How do we believe?
I hope you enjoyed my photo journey so far….you may have learned a little about me along the way.
There are more to come!
Remember, if you would like to join me in this photography journey, come join the Facebook group, there’s a great group of people putting out some great work.