Thoughts on Migraine Hypersensitivity

Thoughts on migraine hypersensitivity

I found a post on Hearing Health and Technology Matters that I felt would be of interest to many of you.

Thoughts on Migraine Hypersensitivity By On July 18, 2016

“As the director of a balance and vestibular clinic, I see many patients with complaints of dizziness, disorientation, and motion sensitivity related to migraine. We work closely with our neurology colleagues in managing these patients. The International Headache Society has an official classification of “vestibular migraine.”

to continue reading this article please follow this link: http://hearinghealthmatters.org/dizzinessdepot/2016/thoughts-migraine-hypersensitivity/

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The Fay Farm CBD Muscle Rub – Review and Give Away!

fay farm 1

“This is a sponsored post for The Fay Farm CBD Warming Muscle Rub. I have been compensated through the Chronic Illness Bloggers network. All opinions remain my own and I was in now way influenced by the company.”

I’ve never had a review or give away on my blog before, but when The Fay Farm asked me to try their Warming CBD Muscle Rub I thought, “Hey, that sounds really interesting!  I bet my readers would love it.”

The rub was created by the co-owner for his mother who has Rheumatoid Arthritis, he told me that has allowed her to sleep through the night.  I thought that was pretty cool, and so very nice.

I received my package a little over a month ago and I’ve been giving the Warming CBD Muscle Rub a try.  I had been out for a bit the day I got the package and my neck was causing me a lot of pain, so I decided to try it out right away.  I was very shocked when I put it on and the pain got better.  Did it go away?  No.  But it got better!  That’s a big thing for me.

I have degenerative discs in my neck, it has really been acting up lately and the pain from it has been more intense than normal.  The pain is sharp, burning, stinging; all kinds of fun.  It also causes the muscles surrounding that area to become very tense, of course intensifying the pain.  The rub worked very well on the muscle pain, the pain right at the discs bit.

CBD oil is a key ingredient in cannabis (marijuana). Unlike THC (the ingredient in cannabis that gets you “high”), CBD does not cause a ‘high’. While this makes CBD a poor choice for recreational users, it gives the chemical a significant advantage as a medicine.  CBD can come from regular cannabis plants or plants harvested for hemp.  The CBD oil that comes from hemp is legal. The CBD oil that comes from regular cannabis plants is not legal in most states.  The CBD oil found in The Fay Farm Warming Muscle Rub is hemp oil.  Read more about Hemp Oil, here.

The organic ingredients are Sunflower, castor, herb- infused olive oil, beeswax, shea butter, menthol, camphor, 50mg CBD oil, cayenne pepper, arnica, essntial oils of rosemary, eucalyptus, peppermint, ginger, cassia, and clove.

From the ingredients I saw that most have some properties that can help relieve pain, like arnica and the cayenne pepper, ect.  I’ve tried Arnica and things like Icy Hot, Capsacium cream or Tiger Balm… and thought they didn’t help as much as this CBD Muscle Rub..  During the past month I’ve tried Arnica and Tiger Balm again just to make sure, and yes The Fay Farm’s Warming CBD Muscle Rub does help me more than either of those.  I even tried my prescription Voltaren Gel and felt the warming CBD rub helped more. I can really smell the cloves and other essential oils.  Some might find the smell a bit strong, but I found it much more pleasant than things like Icy Hot.  (I have to note here, I’m very sensitive to smells, this is a bit strong to me, but it isn’t artificial or really stinky, I haven’t had a problem with it.  Hubby says it’s a light sent, he also agrees it’s not offensive.  We both kinda like the smell.)

fay farm open

The rub is softer in viscosity than I thought it would be just looking at it. I thought it would have the consistency of petroleum jelly, but it is softer, smoother.  When I first got it I put my fingers in to get some and I got a lot more than I intended.    Now that I know the consistency it is very easy for me to use.  I’m glad it doesn’t come in a tube because I never feel like I get all of the ingredients out of a tube, and if I happen to get too much on my finger I just scrape my finger over the side and put it back in the tin.  You can’t do that with a tube.

Will it work for you, well only you can decide that, and since you are one of my readers you can receive 10% off your entire order and free shipping (in the U.S. only) by mentioning “Picnic” or “Ants” in the comments when you order you products!  (When you add everything you want in your basket, just add ‘picnic’ or ‘ants’ in the comment section of the order form and you will get 10% off.)  Yes, you get to take 10% off your whole order, not just CBD products, and the offer doesn’t expire.  How cool is that??

fay farm 3

 

They sent me a normal size and 2 sample sizes so I thought I’d share with 2 of you.  I’m giving away two (2) .5 oz sample containers of The Fay Farm’s Warming CBD Muscle Rub.  If you’d like to receive one of them, just leave me a comment and I’ll randomly pick the 2 names. (if you’d like to leave a comment but don’t want to enter, please let me know) That’s all there is to it.  You have until April 29th to enter and I’ll announce the winner on May 1st.  (sorry but this give away is only available to those in the continental US.)

I’ll also send the winners an email.  Do not leave your email in your comment, I will get it from the information you supplied the first time you made a comment.  If you don’t get an email, you can always check back here.

If I do not hear from the winners by May  6th, alternate winners will be picked.

I hope you enjoy the rub as much as I have, or more!

 

I Give Myself Permission to …

I’ve been participating in a Chronic Pain and Illness photo project.  I participated in the same group last year, you can see those photos on these posts: Chronic Pain/Illness Photo Project, Chronic Pain/Illness Photo Project 2015 Week 2 , and Chronic Pain/Illness Photo Project 2015 Week 3.  This year I’m sharing a few photos here and there, not the whole project.

I’d love to hear your take on this topic.  What do you give yourself permission to???

Today – I give myself permission to Cry.

My x-rays showed more degeneration in my neck. C5-C6
The pain is intense. It just hit me that this is only going to get worse. The pain will always be there.

My father is in the hospital. I can’t go. I can’t ever go.

Today I give myself permission to cry.

(photo taken today, I manipulated it with photoshop, but the tear is real.)

crying

Mindfulness Quotes

Mindfulness practice has helped me get through some of the roughest patches of my life.  I haven’t been practicing as much as I want and would like to resume, I thought a good way to start would be to post a few of my favorite quotes on mindfulness.  I hope you enjoy them too.  (all photos were taken either by me or Stuart)

“Mindfulness is simply being aware of what is happening right now without wishing it were different;

enjoying the pleasant without holding on when it changes (which it will);

being with the unpleasant without fearing it will always be this way (which it won’t).” ~James Baraz

palm tree palm springs

“In the end, just three things matter:

How well we have lived.

How well we have loved.

How well we have learned to let go” ~Jack Kornfield

butterfly on flower

“Be kind whenever possible. It is always possible.” ~Dalai Lama

“Realize that this very body, with its aches and its pleasures,

is exactly what we need to be fully human, fully awake, fully alive.” – Pema Chodron

road runner porch palm springs

“If you want others to be happy, practice compassion.

If you want to be happy, practice compassion.” ~Dalai Lama

“Be happy in the moment, that’s enough.

Each moment is all we need, not more.” ~ Mother Teresa

** One reason I haven’t been keeping up my mindfulness practice like I used to is that the depression side of my Bipolar Disorder has been taking over my desire to do many things.  I started seeing a new psychiatrist on Monday.  It was a very in-depth appointment.  I took a lot of psychiatric tests before I saw him.  They mainly showed that I have a bit of a hard time concentrating.  Two of them weren’t really fair because they are exactly like a “game” on Luminostity that I play a lot, if I hadn’t been playing that for a while I would never have been able to do as well on those tests.  We discussed my past treatments, what’s going on, all kinds of stuff.  He is adjusting some of my medications, and referring me to a therapist he thinks would be good for me to see.  I will go back in a month.  I’m feeling better just knowing that I am much more comfortable with my care provider and think this is a very positive move.

 

On my mind…

me pop and terry2
Left – Terry, my sister, Middle – My Pop, Right – Wendy, me

I don’t talk about my family often, other than hubby and the furry babies.  But there is something on my mind, something that may explain part of sadness.

My father had liver cancer in 2013, he went through treatment (chemoembolization) and they got it.  It was a much easier way to treat cancer than anything I’ve ever seen.  He has been doing well since then….

Until his check up in December, well even then they didn’t think anything was seriously wrong.  When he had his initial cancer he had a large tumor that they got rid of, and he had a tiny little tumor that they left alone, but they have watched.  It hadn’t grown at all then at his December check up, it was an itsy bitsy bit bigger, so they decided to go in and do Radiofrequency ablation (RFA) and get rid of it.  They did this the near the end of January.  During that procedure the doctor found more 2 tumors.

This was supposed to be an in and out no big deal procedure, but it took my father a while to recover from it.  Last Monday he had the chemoembolization again on the remaining tumors, this procedure is less hard on him.  Now this coming Monday he will have RFA again on both of the tumors.

My father is 82 years old.  This is really hard on him.  It’s also really hard on my sister.  She is taking care of him.  She was taking care of him after his first surgery when I was put in the hospital for having seizures.  She was so worried about me she got my uncle to come stay with my father and came to help me, then she turned around and went right back to care for my father again.  For over a month now she has had no life of her own, she has only been taking care of others, and I don’t know how much longer she will have to do this.  She is normally very involved in her grandchildren’s lives, I know this has to be hard on all of them.

I haven’t been able to go see my father.

I can’t help either of them.

I can’t help but think….what if…

and I can’t help but feel worried, sad, and guilty.

 

When you have times when you can’t help others who you love, how do you handle it?

I shouldn’t feel guilty for being sick, but at times like this, I do.  Well, I feel guilty that my sister has to shoulder all of this on by herself.  I feel guilty that I can’t even be there to hold my father’s hand.  And I feel guilty that I felt better today than I have since I can remember.

After days of having vertigo constantly, yes I had 2 days of rotational vertigo that went on every single second, I woke up feeling amazing today.

I had a really good day…..it’s hard when I think about what my family is going through.

 

ER – ICU – 3121 – Home

I got home from the hospital on Sunday afternoon.  I just read the post I wrote while in the hospital.  I’m so sorry, I had no idea that it was like that.  I would have let you know I’m alive before now!  You should have seen the status I put on Facebook!  It completely blows my mind that at the time I read these things after I wrote them and thought they said what I meant to write.  Yep…*Swoosh* MIND BLOWN!!

Here’s what has happened….I’ll refresh your memory from the last post, as if you could understand it.

I’ve been having these little muscle twitchy things.  Sometimes just minor, sometimes more pronounced, it always happened on the right side and it coincided with long days of vertigo, or migraines.  When I was exhausted, stressed…ect.  On Wednesday it happened without these being present.  It happened 3 times at home each time getting worse.  We decided to go to the ER.  As soon as I walked ….wobbled…in to the ER, it happened again.  The first thing they did was have me pee in a cup (check my electrolytes), and then a CT scan. The CT technician was great.  When it was over he stepped in the office to do the paperwork and it started, I remember thinking, “Where is he”…and then I screamed when the elevator hit the bottom floor and I was in motion…and scared, really scared, and crying…I didn’t know why I was but I couldn’t help it.  The CT tech was leaning over me, telling me I was OK, that I was in the hospital, we were going back to the ER, and he just kept saying that.  That was the first of many for days….some better, some worse.

At first they put me in a normal room, it was just to be for a little bit, until they could get me on the 5th floor, it has cameras, they wanted to observe me all the time….seizure watch.  But there was no room on the 5th floor, so I was put in ICU.  I could not be left alone….or far from help.  Stuart was there, but he had to go home to take care of our pets, and gosh he does have to sleep.  Luckily, my sister came soon and helped, thank goodness.

While I was in the ICU I had a 24 hour EEG, actually it only lasted about 15 hours because I had more than 6 seizures during that time so they didn’t need the whole time.  It came back clear.  I was sent to a regular room.

The doctor came in and told me that I am having non epileptic seizures.  He said they had a theory…  At that moment, I had a seizure.  He told my husband that, no, what he was thinking would not cause anything like that.  He was thinking something much less violent.  There are theories, but I don’t even know right now.  I will be seeing  my neurologist today.  I see my PCP next week.  We’ll see.

Since I’ve been home the seizures have calmed down.  They aren’t as intense.  I don’t know if it will stay that way.

Strange thing, while I’ve been having the intense seizures I did not have vertigo.  I would have small little swirls, that lasted just seconds, but that’s all.  Yesterday when I had severe rotational vertigo for hours.  I didn’t have a seizure until it was over for a while.

But I was in the hospital from Wednesday night to Sunday afternoon without having any real vertigo?  Don’t get me wrong, I don’t want seizures instead.  I just think it’s weird.  Now that I’ve said that, oh lordy please don’t let me have both at the same time!

I think I’ve told you all I know for now.

So far…another mystery in this crazy world of mine.

I’ll talk more about this soon….but….I’m having a Pity Party, and I’m not ashamed to say it!

I hope this makes a bit more sense….I’m really too tired to proof read it, not like it did much good the last time.  🙂