Meaningful Monday – Suffering

20180601_181038.jpg

“Suffering has been stronger than all other teaching,

and has taught me to understand what your heart used to be.

I have been bent and broken, but

—I hope—

Into a better shape.”

Charles Dickens, Great Expectations

“There is the solitude of suffering,

when you go through darkness that is

lonely, intense, and terrible.

Words become powerless to express your pain;

what others hear from your words is

so distant and different from what you are actually suffering.”

John O’Donohue, Anam Cara: A Book of Celtic Wisdom

We must look deeply in order to understand

the needs, aspirations, and suffering

of the person we love.

This is the ground of real love”

~ Thich Nhat Hanh

 

*photo by W. Holcombe.  Baby Opuntia (prickly pear) Cactus.  Please do not use without permission.

I did things a little differently this week, the not all of the quotes would be considered “mindful”, but I felt they were more meaningful this week.

 

 

Advertisements

I want to be a better friend to those who are in pain.

 

20180601_1818101

*Content warning: This post discusses suicide and depression.

A friend of mine shared this on Facebook and I had to share it with you.

Why “I love you” and “Please reach out” are the crappiest things to post after someone has died by suicide – by Deanna Zandt

I have been one of those people with good intentions who have simply said the wrong things, and for that, I’m deeply sorry.  I have been there, yet I still don’t know what to say when a friend is in their darkest moments.  I need to always remember, I didn’t want to die because I didn’t feel loved, I simply wanted the pain to stop.  It helped me to have someone sit with me, hold my hand, and simply be a witness to my pain.  It helped me to know that they would help if they could, but that they didn’t try to force this false help on me.  I know these things, but it’s very hard to do these things for someone from afar.  I can’t simply sit with someone when they are in pain if I can’t be physically with them.  Often, when I reach out to someone through texts, or messages, I don’t know what to say after that initial contact. Silence is unacceptable when you are texting.  I want them to know that I care, and I simply want to be there for them.  I know I can’t fix it, but that doesn’t mean I don’t want to.

I also read another article I found interesting: Depression and Suicide: Being mindful and accepting of the pain of the dark days – by Jack C. Surguy M.A. 

Jack Surguy mentions something that I found helpful for me; by accepting that everything changes I can take solace in knowing that these feelings will not last forever.  (even if they feel like they will)  When I’m am suffering I know that it will end, that is actually my mantra when my emotions are all out of wack, “this will end”.  I guess it’s a variation on “this too shall pass”, but that sounds trite to me for some reason.  I promise no matter what you are going through right now, good, bad or indifferent, it will change.

I hope you find both of these articles interesting and possibly helpful.

Right now my wrist is killing me, so I need to stop typing, but after the deaths of Anthony Bourdain and Kate Spade, I felt I needed to talk about this, I want to do better.  I want my friends (you) to know I love them, that I care, and that I respect their pain.  I want them to know this every day, not just times like these.

 

* photo by W. Holcombe.  A red yucca plant viewed while lying down looking at the sky.  I found it stunning.

 

Monday Quotes – Gifts

IMGP0619

Greetings! I am filling in for Wendy this Monday, and as it is my birthday, I thought I would use quotes about gifts. Not just the tangible, wrapped in fancy paper with ribbon and bow. But the intangible, the ephemeral, the ethereal gifts we can give ourselves every day.

“This life is your gift to yourself…Open it!” (anon)

“The greatest gift you can give yourself is a little bit of your own attention.” (Anthony J. D’Angelo)

“Every day, once a day, give yourself a present. Don’t plan it. Don’t wait for it. Just let it happen.” (Agent Dale Cooper, Twin Peaks)

image: Lorraine 2017. Please don’t use without permission. Thanks.

 

My Bipolar Self Care

spirit me purple

self portrait

After Saturday’s bout with bipolar rage and my continued mood fluctuations I’m reminding myself about self care. Eating right, getting enough sleep, getting some form of exercise, keeping a routine, abstaining from caffeine, alcohol, watching or reading anything that is upsetting, or anything that may alter my mood, ……these are a must when dealing with my bipolar disorder.
I’m paying very close attention to my moods and trying to step back and refocus before things get out of control. (yes, I’ve had a few moments of quick anger, but I took a step back, cleared my mind and took a deep breath. I’m happy to say it’s been working well, it’s just hard to stay on top of)
I’m trying hard to stay in the moment. Worrying about what has happened, or what may happen will only make things worse. That worry could be a trigger.
 
I’m attempting to meditate more. Meditation helps to calm my racing thoughts, but I have to realize it’s okay to have those racing thoughts while I’m meditating, I just note them and come back to my breath without judgement. That’s the big thing. No judgement. Beating myself up doesn’t help matters, it will only cause me more anxiety. Being gentle with myself.
 
I have Stuart watching me too. I know sometimes my moods will shift and I don’t realize I’m overreacting. We realized that if he said I was overreacting I might get really angry, instead, when he sees that I’m not acting like myself, he hugs me.  So far, it’s worked.  I was started to get worked up and angry, and Stuart came over and just held me and I melted.  I know there are times that I would not respond well to this, but after talking about everything this was the best option we could come up with, and it’s working…so far.  Another huge thing I’m making sure I’m doing: talking with my husband.  We are working hard to make sure the lines of communication are open.
I saw my psych doc yesterday.  We are adding another mood stabilizer to the mix that helps more with the anger aspects of bipolar.  After I’m on it for a while, we will probably reduce the other one I’m on and hopefully get rid of it, and let the new one take over.  Funny to say “new one”, I think it’s the oldest bipolar med.  I’m going back on lithium.  Wish me luck!

Mindfulness Monday – abandon

purple flower

“Sometimes people hunger for more than bread.
It is possible that
our children, or husband, our wife,
do not hunger for bread,
do not need clothes,
do not lack a house.
But are we equally sure that
none of them feels alone,
abandoned,
neglected,
needing some affection?
That too is poverty.”

~ Mother Teresa

“Even if others abandon you
You must never abandon yourself.”

~T. Helwig

 

Mindfulness Monday 20 – This moment

asheville-fall

“Breathing in,
there is only the present moment.
Breathing out,
it is a wonderful moment.”
~ Thich Nhat Hanh

 

“If we are not fully ourselves,
truly in the present moment,
we miss every thing.”
~ Thich Nhat Hanh

Psychogenic Non-Epileptic Seizures – What are they?

eye with monster

I want to tell you a little about something that is going on with me.  This is very difficult to talk about.  Admitting this is happening to me is difficult.  Talking about it is difficult.  It shouldn’t be this difficult, but it is.

You may remember back in February I was hospitalized for having seizures and it was then determined that I do not have epilepsy.  It was thought that a medication I was on may have caused the seizures but that isn’t the case, I’ve had more seizures since being off the medication.  (some people prefer to call these seizures events or episodes instead of seizures since the brain is not firing like it does during a true seizure.)   I do not have them regularly, and I haven’t had many, but I do still have them.

“A seizure is a temporary loss of control, often with abnormal movements, unconsciousness, or both. Epileptic seizures are caused by sudden abnormal electrical discharges in the brain. Psychogenic (non-epileptic) seizures are attacks that look like epileptic seizures, but are not caused by abnormal electrical discharges. They are stress-related or “emotional.” They are sometimes called pseudoseizures, but “psychogenic non-epileptic seizures” (PNES) is now the preferred term.” -1

The type of seizures I get are psychogenic non-epileptic seizures (PNES).  By definition, PNES are a physical manifestation of a psychological disturbance and are a type of Somatoform Disorder called a conversion disorder.-1  “For some patients with psychogenic nonepileptic seizures, the seizures are a manifestation of trauma, which is also known as Post Traumatic Stress Disorder. In order to treat patients with PTSD, the clinician has to take the seizure apart to see what the seizure represents in terms of emotions and memory as well as where this trauma is stored in the body.”(Kelley)-1

Since many people with epilepsy have normal reading with an EEG, PNES is diagnosed by an EEG with video monitoring which has to be read by a specialist in epilepsy.  Diagnosis this way is nearly 100% accurate.  There are about 10% of patients with epilepsy who also have PNES.

“PNES, unlike epileptic seizures, are not the result of a physical brain disease. Rather, they are emotional, stress-induced, and result from traumatic psychological experiences, sometimes from the forgotten past. It is well known that emotional or psychological stresses can produce physical reactions in people with no physical illness. For example, everyone has blushed in embarrassment or been nervous and anxious as part of a “stage fright” reaction. Today, we also know that more extreme emotional stresses can actually cause physical illnesses.”-1

As my psychiatrist said, my brain just gets to the point where it decides it can’t handle any more and says screw it.  I’m seeing a psychiatrist for medication to help with anxiety and my normal bipolar stuff, and whatever else comes up.  I’m seeing a psychologist for therapy to try to figure out what is causing this.  I’m not going to discuss what is causing my seizures because frankly we aren’t exactly sure yet.

Today I wanted to make people aware that psychogenic non-epileptic seizures are real.  People cannot control them.  People often refuse to accept the diagnosis because of the stigma related to it.  Family and often physicians do not understand that the patient cannot control what is happening to them.  I wanted you to know that you know someone who is going through this, and I have no control over it.  I also wanted people to know they are not as rare as you may think,  “in the general population the prevalence rate is 2-33 per 100, 000, making PNES nearly as prevalent as multiple sclerosis or trigeminal neuralgia”.-2

for more information please read

  1. Psychogenic (Non-Epileptic) Seizures by University of South Florida College of Medicine
  2. The Truth about Psychogenic Non-Epileptic Seizures