Me, Me, and More Me

New Haircut Today! New Glasses last week.
You can see the back.
Before.
my before glasses and how my hair has been worn on a day to day basis for many years.

Today I got my haircut!

My appointment was a 9am. I normally wake up between 8:30 and 9am, to insure I was awake for my appointment I had to get up when Stuart left for work at 6:30am. He was very kind and went in 30 minutes later than normal so I could sleep in. hahaha 1st accomplishment – I got up early. I got ready, took silly pictures of me and drove to my appointment. 2nd accomplishment – I drove! The appointment took over an hour, during which a migraine started that hit an 8, I thought I was going to throw up and had a hard time staying up right, but I carried on and I’m fairly certain my stylist never knew how badly I was hurting. She did know I had a headache, but she didn’t know I felt like spewing chunks on her station.
3rd accomplishment – I made it through the appointment. When I left I sat in my car with the air on full blast, texted a friend and drank lots of water until I felt it safe to drive the 2 miles home. (It really would have sucked if I would have needed to call Stuart to come get me) 4th accomplishment – I made sure I was safe. I gave myself permission to spend the rest of the day resting and taking care of myself. I will be doing my breathing and strengthening exercises before sleeping tonight. That will be number 5 and closes out my accomplishments for the day.

I feel like I’m having a one sided conversation with you, my friends, I wish I could sit and have a cup of tea with each of you and learn more about you. This may be the last of my daily musings, I’ll be back in a week or two, or when something exciting happens, until then I’ll be around with a little this and a little of that, until then love yourself. xoxo

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May 3rd Journal Day – wiped out

Tucson AZ Spring 2019 – W. Holcombe

After the long day I had yesterday I was not surprised when I woke to find my symptoms had increased today.

My migraine pain fluctuated throughout the day between a 6 and a 9. The cognitive issues and fatigue increased. I’m so grateful I can get medical marijuana, it’s the only thing that is helping my pain right now. It’s far from perfect, for a number of reasons, but if I hadn’t had it today there’s a strong possibility I would have gone to the ER for help.

Since I’ve started keeping this journal, (yes all three days..lol..) each time I do one little thing I take a mental note of it so I can make sure to write about it. Because of that, I now have a list of my little victories for the day:

  • I picked up some dishes left in the livingroom and put them in the kitchen, started to put them in the dishwasher but, found I could only fit one in so I started the dishwasher.
  • I picked up a few things left sitting around the livingroom and put them away.
  • I emailed back and forth with my Advanced Bionics consumer specialist about my cochlear implant processors dying. Proud of myself for taking care if this without Stuart.
  • I fed my dog and gave her fresh water. (This requires bending over which is very hard for me today. Kiki would have waited for Stuart, but she would not have been a happy pup)
  • I started prepping for dinner. I cut the meat into bite size pieces, cut up the leaks, made the marinade, and put it all together. I even put all the stuff away and cleaned the knife and cutting board. (Stuart did the rest of the meal)
  • I brushed my hair. I brushed my teeth. I washed my face. I moisturized. I took my medication correctly all day.

There’s a number of things I didn’t get done, like get dressed, but that was so not important today.

Tomorrow morning I’m going to a painting class with my niece. I’m trying not to worry that I’ll have a severe migraine. I am determined to do this with her. I missed her birthday party, and this class was my gift to her. (She wanted to do something artsy with Aunt Wendy) I don’t normally feel like I have to push myself through no matter what, but I dont want to disappoint this child.

Please remember when reading this journal entry my cognitive abilities are a bit dulled right now. Also, This is the first time I’ve posted from my phone, I works.

I did this!! A reflective look at 2017

2017 collage

January is the time that people make resolutions to do things differently (better) than the year before.  My theme for this past year was “Just Stop”  (just click here and you can read that post), I will continue to “Just Stop” in 2018 and beyond, but for now I want to look back.

This year, I’ve decided not to make resolutions, sure there are things I want to change, things I plan on doing, things I want to do….The whole Bucket List, you know, however, there is something we often don’t do, we don’t look back and see what we have accomplished.  I think we need to do that more often.

When we get sick we often look back on our “old life” and can’t see how much we’ve accomplished since we got sick.  We keep thinking about how we can’t do what we used to, I see so many people with chronic illnesses doing amazing things every day, but they can’t see it.  They keep looking back at what they used to be….never forget, you are still the same person.  The old self and the new self is the same self.  Let’s put those together and be okay with it.  (yes I know that isn’t easy, even when you feel you have gotten to that point, there will still be times when you think about the “old me” longingly)

So I decided to sit back and look at 2017, and just think about what I accomplished, and I was pretty amazed at what I found.

  • I worked hard and lost 45 pounds.  Cool.
  • I started exercising.  Just little things, but it’s a whole lot more than it used to be and I’m getting stronger so I can do more.
  • I overcame some pretty severe side effects to a medication.
  • I worked with my doctor and found the right medication, I didn’t give up.
  • I survived breaking my foot while alone.  I simply iced it, propped it up and waited until Stuart got home to take me to Urgent Care.  I didn’t panic.  yay.
  • I reached out to the local Hearing Loss Association of America (HLAA) chapter and I’m meeting new people through it.
  • I participated in the HLAA Walk4Hearing.   How cool is that?  okay, so I wasn’t able to actually “walk” that day, but I raised money and I went out there and showed support.  and I got a t-shirt to prove it!
  • We had visits from 4 groups of out of town guests this year, and I handled it all well.  (that doesn’t mean it wasn’t challenging, but my guests know my limitations and love me anyway, so it was easier)  I haven’t had guest come to my house in a very long time!
  • We went out of town to see the eclipse!  That was so cool; a little mini vacation centered around a most amazing event.  (and I made a new friend there too)
  • I went to an out of town wedding for the daughter of my best friend from the first grade.  I felt beautiful (that isn’t something I’ve been able to say in a long time).  I had a wonderful time, and I saw people I haven’t seen in 40+ years, that’s amazing.  (and now I’m in touch with another grade school friend who is just the sweetest lady, I just love her.)
  • I’ve had less vertigo this year.  Actually, I do have vertigo often, but it doesn’t last long and I’m not completely incapacitated for hours and hours….um..days.  I don’t know how much control I actually had over this, but it’s a huge deal for me.  (I’m actually thinking something I’ve been doing may have helped, but I’m not sure)
  • I made some new online friends, and have gotten closer to some old ones.
  • I went to a Christmas party where I knew no one.  (the HLAA Christmas party)  I arrived right when the party was ending (yes I read the invitation wrong, I thought it started at 7pm but that was the end time!  hahaha)  I still met some awfully nice people. (I knew these people would understand if I couldn’t hear them.  I exchanged many emails with the chapter leader beforehand and she made me feel most welcome and understood my fears)
  • I went to a family Christmas party at my cousin’s house.  I haven’t been to a family holiday gathering in something like 20 years.  I was very nervous, but it went well.  I met some wonderful people who were so supportive of my hearing loss, they even practiced sign language with me, I didn’t feel left out, it was nice; and I look forward to nurturing that friendship.
  • After going to those two parties (and the wedding in October and the Eclipse in August), I realized I can do this!!  I can socialize again.  No, I might not hear everything, I might have to ask people to repeat themselves, to look at me when they talk, and I might have vertigo…..but it really feels good to know I can do this!!  That knowledge is a huge accomplishment.
  • I searched out and found supplements to help with my conditions.  Not a lot, but some that have made a little bit of a difference.  I feel more empowered the more I learn about my conditions and the more I am able to help myself.
  • I have been home alone often and I didn’t die.  Okay that may be a bit melodramatic, but Stuart used to have to work at home almost every day, now he goes into the office.  Some days I do need him to come home to help me, but I do not need him to be physically with me all the time.  awesome.
  • I baked during the holidays!!!!  I haven’t been able to do that in YEARS!  and I love doing it, so this was amazing for me!!
  • I enjoyed the holidays.  I know that’s not much of an accomplishment, but the holidays can be hard, and have been at times very hard.  This year I sang carols for over a month!  I shouted “Merry Christmas”  to a Santa that was waving outside of a store and it was joyous when Stuart told me that “Merry Christmas”  was shouted back.  (I felt like I was in a Christmas movie)
  • Most recently I’ve begun to “paint” using the AutoDesk Sketchbook app, and I’m creating some pretty nice pet portraits.  I’m pretty happy about that.
  • I started Loom Knitting this year!  I’ve made a number of blankets, scarves, and the coolest pair of socks ever!
  • one more – I only had 2 or 3 (I think) seizures this year.  (if you don’t know about me and seizures you can read about it here: Psychogenic Seizures…)  How cool is that?  Yep, therapy works when you work hard.

Now, I challenge you to sit back, take a relaxing breath, and think back over the year and only think about things you have accomplished (or some wonderful things that happened).  There were a lot of things that went wrong this year (like the awful medication side effects, and watching our country fall apart….)  but it really doesn’t do me any good to think about that stuff.  Look at all the things I did!!  That is worth a reflective look at 2017.

(about the photo above: From left to right starting with the top left:
Me and Kim, me and Lisa, Walk4Hearing t-shirt
Baked Christmas Goodies, silly Christmas light necklace, me in Santa hat
Stuart modeling the cool socks I made, a portrait of Max, Me at the wedding)

I’m on Instagram now!  (Not as Picnic with Ants, just as me)  If you’d like to check it out, I’m wendy.holcombe

Gratitudes 3 – A Pretty Darn Good Week!

by w. holcombe
by w. holcombe

Things haven’t been perfect this week.  I did have a night filled with cluster headaches.  But I got through it, and since then I’ve been feeling, well, pretty darn good.  Until I got this little virus, but I already wrote about that, and I’m grateful that it will run it’s course and I’ll be done with it!  Plus I’m very Grateful that it really hasn’t been that bad, a couple of icky days, but that’s about it.

I am so very GRATEFUL that I found something that is helping me with my tummy issues!  I found a book that addresses the food issues that I have, but I plan to write a whole post about this, it’s so exciting! And I think it could help others with dietary issues.

I am GRATEFUL:

  • that I have a new psychiatrist!  She is so professional.  I’ve only seen her once, but she took a very detailed patient history, discussed all my medications in detail, discussed my concerns, and our future plans.  I was very impressed.  After the last fiasco with my previous doctor, it is such a relief to find a doctor who is not only professional but enjoys her job.
  • that I have been on more regular sleep schedule.  This is something I haven’t had for a very long time.
  • I am waking up with more energy.  Of course, this is probably because I am on a more regular sleep schedule, but it sure is nice.
  • I’ve been able to go down stairs every day this week. Most people probably don’t know just how disabled I have been, but tackling the stairs have been a huge task for a long time.  Most weeks I’ve been lucky if I’ve made it downstairs one or two days.  So making it down stairs every day for a week, that is a great accomplishment!
  • I have gotten out of the house many times this week!  Not only have I made it downstairs every day, but many days I’ve gone out.  I went to the grocery store….a HUGE accomplishment!  I went for a ride with the top off of the car!  I went to the Thrift store and got a new pair of pants.  I went and looked at glasses.  (I have an eye doctor’s appointment tomorrow, and will need new glasses.)  I even went out to eat, this is hard because of all the noise.  I’m also proud I went out to eat and stayed true to my diet, I didn’t eat anything that would make my tummy unhappy.
  • yoga pose 1yoga pose 2I exercised a little this week….a very, very little…but I did something!  Not only did I do a lot more in general, and you can call that a lot more exercise…I know my body is!  I did a few yoga poses almost every morning.  Just a few.  I’m trying to learn to balance more with my eyes instead of relying on my ears so much.  So I’m doing some of the standing yoga poses while focusing on a focal point.  Maybe it will help.   By going out an doing more I’m also working on increasing my stamina.
  • I didn’t let a virus ruin my week.  I was having a really great week, then I caught a virus and suddenly I felt crappy.  I thought, am I going to start feeling really bad again?  Then I caught myself….Stop thinking like that.  I can’t predict the future.  And what has been happening has been great, but it doesn’t mean it will continue.  I  will live in this moment.  and I’ll enjoy it.  If it’s a bad moment, I know it’s a moment.  It’s my moment.  And it’s OK.  (A note to Laurie at HibernationNow….Yes, I did over do it…You were right!  so I’m very tired today…but it was worth it, yesterday I had a a very fun day!)
  • I realized that even having a virus I still don’t feel as bad as I have felt.  No I don’t want to live in the past, but it was a bit of an eye opener when I realized I was lying here sick and I didn’t feel as bad as I have for a lot of the time this past year….heck the past couple of years.
  • My head hasn’t hurt much at all!  As I mentioned above, I had a night of cluster headaches, but since then….my head has been so good to me.  There’s a couple of reasons I think this may be, but I’m just grateful that it has happened!  I’m sure I’ll have headaches in the future, but to have the relief I feel now….so GRATEFUL.
  • I made my lunch today all by myself.  I cut up my own chicken today, and warmed up my own lunch.  Because of my balance issues and sudden vertigo I haven’t trusted myself to use a knife in a long time, at least without supervision.  Today I made my lunch with Stuart upstairs.
  • To hear my husband say, “It’s so nice to be able to do things with you.”   Remembering to be in this moment…..