Today marks the beginning of WEGO’s Health Activist Writers Month Challenge. I will attempt to follow each prompt every day to bring awareness to chronic illnesses. Be sure to check out WEGO’s Facebook Page for more blog posts during this month. Don’t forget you can always follow my posts on my Facebook Page too!
Today’s #HAWMC prompt is: First, let’s get to know each other! What drives you to write about your health? What do you want other Health Activists to know about your condition and your activism? Reflect on this for 15-20 minutes without stopping…GO!
What drives me to write about my health? Since the prompt says to write for 15 – 20 minutes I’m going to write stream of conscious, if I repeat myself or have grammatical errors please forgive me.
I started writing about my health for the same reason I still write about it, to help others who feel alone when faced with the same conditions I have been faced with. I’ve found support through my blog and I hope I give the same.
I try to bring awareness about Meniere’s Disease, Chronic Migraine, and Bipolar Disorder and let other’s who have these diseases know they are not alone.
I also have other illnesses that I mention along the way. Like Degenerative Disc, Hypothyroidism and others. I’ve also recovered from Avascular Necrosis in my hip and like to give others with this condition hope.
What drives me is my illnesses and my love for others. My compassion for others and myself. I write because it helps me and in turn I hope it helps others.
What do I want others to know about my conditions and activism?
Well there’s an awful lot to know about my conditions, as there is more than one condition to cover. I’ll pick just talk and see what comes out.
Meniere’s Disease – Meniere’s is diagnosed by the symptoms, there is not definitive test for it. The symptoms are: Random attacks of Vertigo, Fluctuating hearing loss, the feeling of fullness in your ears, and tinnitus. If you have all of these symptoms and they have ruled out other illnesses then by process of elimination they diagnose you with Meniere’s Disease. The progression of the disease can be different for different people. It is normally only in one ear, it can attack both ears. I have it in both ears. It used to be thought that the disease would “burn” itself out. As the patient lost more hearing the vertigo got better, until there was a leveling out period where the patient no longer has vertigo. As can be seen with me that is not necessarily the case. I am deaf now and still have vertigo often. There is not sign of a “burn out” for me. I do want everyone to know that this disease does not progress the same for everyone. just because I lost my hearing does not mean other people will, I still have vertigo, but that doesn’t mean other people will. I’m in a very small minority.
Bipolar Disorder – I want people to know that people aren’t crazy when they have this. Being Bipolar doesn’t stop me from living a normal life. I want people to know that not everyone is the same with this too. I am lucky. With medication and therapy I am doing very well, and have been for years. Others are not so lucky. Medication does not work for everyone. Everyone with this disorder has to work hard.
Chronic Migraines – I want people to know that migraines are not just a headache. They are so much more than that. They make you sick all over. Having a migraine for more days during the month than not can put a huge damper on life.
It takes a lot to face the world with a smile on your face when you are faced with these illnesses and more, but with the help of mindfulness and a support from those who care about me I get by better than I could ever imagine.
This is some of what I want you to know about me and my illnesses and why I write. I hope you will join me on this month long journey. Wish me luck that I can accomplish this goal of posting every day this month!