Tag: bladder pain

Late Night Rambling

On By WendyIn Chronic Illness, Migraines, Pain15 Comments
Me, manipulated in the #photolab app

It’s 1:29am and I can’t sleep. I hurt all over, and I’ve been having vertigo and migraines with all the symptoms that go with it.

I’m posting from my phone so who knows how this will turn out. I doubt I’ll be able to edit it very well. I apologise for errors ahead of time.

It’s been over 2 months now since Stuart got laid off, I’m not tired of him, but I do miss my private time. However, I’ve been having such an increase in symptoms it’s probably best that I’m not alone all that much.

I’m tired. So very tired.

I’ve had a non-stop migraine for almost two months now and I, at least partially, blame my doctor. I had a tele-health appointment with her the beginning of May, right when we were increasing my Spravato treatments back up to two a week and I had every reason to believe that my migraines would get better again. They didn’t, they got worse, and I have no rescue medication that works. I got in touch with her less than two weeks after my appointment to ask for help and she said I need another appointment, so I’ve been waiting two month! The soonest they could get me in was July 17th. I’m finally going to see her next Friday. Now I have a Status Migraine, that’s a bitch to treat. I don’t know if this would have happened anyway, but I feel if I’m in this kind of situation she needs to take care of her patient, so I’m searching for a new doctor. I’m tired of her never being available when I need her.

I had the freakiest, thing happen to me earlier. I was sitting on the toilet and it felt like the toilet started moving under me. Normally when I have vertigo it feels like I’m moving, or the whole room is swaying/rocking..ect. it has never felt like the seat under me is wiggling. Soon I did feel like I was moving, well, it felt like my brain was. It still does just a little, much more if I move my head. I’m so grateful I have an amazing husband who will help me off the toilet and to the bed when things like this happen.

When I got to the bed I could literally feel my brain trying to spin in my head. My eyes weren’t all the way spinning, my vision was a little off, but not like it can be. I rarely have that sensation any more, thank goodness, it’s really hard not to throw up when you see the world spinning around you. It’s hard enough as it is. Right now, When I move my head it feel as if my brain rotates and moves around in my head. My internal gyroscope doesn’t work. My vision spins for a few seconds, and I can feel bile coming up my throat. The only hope for sleep is to lie perfectly still and hope I don’t turn over in my sleep until this has passed.

Now it’s after 2am, I don’t know if the pain will allow me to sleep, but I’m going to try.

Advertisement

New look and a Mini Me, Update

On By WendyIn Chronic Illness9 Comments

I hope everyone had a magical holiday season. I hope you didn’t kill anyone. I know I wanted to a few times. Luckily it ended when it did.

I’ve started a new look to my blog, I will probably change the photo soon, but I wanted a better font and line spacing, especially with the new way WordPress is making me format post now.

Thought I’d give you all a little health update since I left things kind of up in the air. My infections seem to be all gone, or at least almost all gone, no worries about that anymore! Yay! But my tests showed that I have an obstruction in my kidneys. Yes, I said, “kidneys” plural. I don’t know what is going on. I had an urgent referral to a nephrologist, but they seemed to not think it was urgent since I don’t have an appointment until January 7th. I have been told that if there is a change in my symptoms to get the ER immediately. Okay, I can do that. I’m thinking this was caused by inflammation from the infections and it will clear up, possibly on its own? (one can hope) Maybe that’s why they weren’t worried about getting me in there sooner? I did have a pretty severe pain yesterday, I decided to drink something other than water and very weak decaffeinated tea and my kidneys screamed in response, so did my bladder. Maybe it’s not just inflammation?

We had a very quiet Christmas. We had breakfast with Stuart’s father, and we watched holiday movies all day. I ate entirely too much the past couple of days. It’s obvious there is something going on there. I simply can’t stop eating. Either this new medication is making me crave all kinds of crap, or I’m not dealing with things as well as I think I am. Maybe it’s a little of both? All I know is that if I’m not eating, I’m thinking about the next thing to eat. (if I’m honest, I know I’m not dealing with everything well, I still have this underlying anger that wants to break through often. My husband has the patience of Gandhi. I don’t know if I would put up with me for this long. He says it really hasn’t been that long, it feels like a life time to me.)

We ended up canceling our rescheduled Christmas dinner too. That has been hard on me. Not really that we had to cancel, but that it is going to be very hard to plan it now. and the decorations would have made it very festive, what am I going to do with that empty spot in my corner where the tree was? We moved the furniture and now there is nothing to put there. hmmm. Luckily I like minimalism. We decided we just shouldn’t try to do all of that when we don’t know how I’ll be feeling. So I’m waiting until after I see the kidney doctor before rescheduling. We decided to make this dinner much more laid back though, spaghetti with salad and bread (all gluten free of course). Everyone was all on board with this too, amazing! Most of the time I’m hit with…so and so won’t eat that…it’s hard when you ask and ask what people can and can’t eat and then when you make plans you hear that it’s not right. This might be the last dinner I plan. I now understand why they all go out to eat so much.

There is still so much drama here that it makes my head spin. I’ve just been lying low and keeping to myself. Stuart worries that I need to be more social. Maybe when I feel better, but right now, as long as we get out for a little bit once a week, I’m good, just curled up in my chair with heat on my abdomen and/or back, I’m good to go for now. I’m worried about him, he’s been awfully depressed lately. I think this move took a lot more out of him than he wants to admit too, and he’s worried about me…darnit.

Well, it’s getting late and I find myself rambling so I’ll close for now. I do find myself rambling much more lately, can’t stop talking, a sure sign that I’m still dealing with mania, but I don’t like this new medication. It has too many side effects and too many things that can go wrong. I hope there is another option. I see that doctor late January, she took a lot of time off for the holidays and I had to cancel my last appointment right before she went on vacation because of the kidney stuff. I really need to see her though, we called and I’m on the wait list, hopefully an appointment will come available. We also asked for orders to get my blood drawn, since you are supposed to do that within the first month of being on this medication to make sure your live is okay. Got that yesterday, will be having it drawn tomorrow.

How’s everyone out there? I’m looking forward to having some of these things resolved soon so I can start the new year on a healthier note. I does seem that I either go out of a year feeling like crap or start a new year feeling like crap. Within the first hour of this year I had a cluster headache (and every day since) that’s a sure way to start the year off with a dud. 😉 I’m sure that it will only go up from here.

I will just stop and be thankful for all the support and love I have.

and just breathe.

Infection – because Zombies are wussies.

On By WendyIn Chronic Illness10 Comments

2ousvb

On November 20th, I had a cyst removed from my scalp that was pressing on my cochlear implant.  I’d had another cyst, in a different area of my scalp, removed the month before without complications, so I felt I knew what to expect, I was wrong.  The cysts are made of Keratin and aren’t a big deal, but they can get rather large and I have 5 that have been bothering me for a long time.  The first one I had removed was visible through my hair…yes I know my hair is much thinner than it used to be, but it was really big.  (measured over 2cm when they took it out)  The recovery from the first removal was uncomfortable, but nothing big.  The recovery of the second cyst started out much more painful, and I still can’t wear my cochlear implant for that ear.  So I’ve been completely deaf, 100% of the time, in my right ear for over a month, and the new psychiatric medication I’m on now causes my tinnitus to increase greatly, the noise is driving me mad!  If I could wear my CI, I would at least have some sound that would help drown out this constant buzzing, chirping, chattering, NOISE!

On the Monday after Thanksgiving (November 26th) I had my annual physical.  During this visit I mentioned that my back was hurting around the kidney area and my bladder had been bothering me a little, so it might be a good idea to check my pee.  I honestly didn’t think they’d find anything.  I had strained my back, so that could explain that pain; and I have irritable bladder that flares up way too often, so these were the obvious culprits, I honestly didn’t expect anything to come of it.  The next day the doctor called to inform me that I have a UTI (Urinary Tract Infection)  They felt they caught it early, so one round of an antibiotic should knock it out.  Sounded like a plan to me.

A week later, I was finishing up my antibiotics and I was in much more pain than I was in before I started them.  Off to the doctor for another urine sample, and it came back positive, I still had a UTI, but it was worse.  So I started Cipro.

During all of this the wound from the cyst removal had swollen three times the size of the original cyst and was getting red.  I was getting concerned, but I was scheduled for another cyst to be removed so I thought I’d just ask then.  But on the day I was supposed to go, my fever was too high and I was having vertigo, so we canceled the procedure and scheduled a wound check.  The night before the appointment the wound started to weep.  It was gross.  I reached up and touched the area and thought, “hey, it’s gone down some”, then I noticed my hand was all wet and gooey.  Ewww.  Off we went to have my wound checked and yes, it’s infected too.  I had one day left on Cipro, but I had to start a Zpack of the new antibiotic because it works better on this type of infection.

That brings us to yesterday, when I was just finishing the Cipro, and my bladder and kidneys still hurt.  I’ve also been running a low grade fever for weeks.  I started yet another antibiotic today!  Yes, this is the THIRD antibiotic I’ve been put on over the last month.  I can’t tell you the last time I needed an antibiotic, and suddenly I have to be on three?  Wow.  Mind officially blown.

One thing though, I don’t think zombies would be brave enough to touch me.