I have no idea where to start this post.
I guess I’ll start first by apologizing for having to have Lorraine do Mindfulness Monday for me again this week (thank you Lorraine, you awesome) I have been feeling like a fraud. I have been talking about mindfulness for a few years now and I simply haven’t been able to live the life. My life seems out of control right now and I haven’t been able to accept that this is the way it will be and be okay with it. My meditation practice has never been as regular as I’d like, but lately it has been non existent. Why is it when I need this the most, I have been unable to simply let that shit go.
Living in close proximity to family has been more stressful than I thought it would be. We haven’t been able to help my father-in-law as much as we thought we would. He simply wants to keep doing as much as he can in addition to caring for his wife, so he has some semblance of normalcy. We do try to see him at least once a week, but that doesn’t seem like enough to me, and we haven’t been seeing as much of M as I thought we would. She has no idea who we are and I’m afraid that is making her a little frustrated. I’m not sure about that though. She is very pleasant to be with, she talks and talks, I just wish I could hear her better. Now that I’ve been more symptomatic, it’s hard to do much to help anyway.
My hearing loss has been much more of a challenge here than I thought it would be. Not only do I have trouble hearing M, I can barely understand anything my niece and nephew say, and my new psychiatrist…well, let’s just say, I won’t be going there without Stuart with me to help translate. She is very soft spoken and has an accent so she enunciates her words differently, it makes it extremely hard to read her lips. I wish I knew sign language so I could request an interpreter. I could request CART, but that’s really hard to set up, so it could make it very hard for me to get an appointment when needed. I also don’t understand my headache doctor, he also has an accent, he talks fast, and really has no idea how to talk with someone who has profound hearing loss. That kind of amazes me. This city has a large elderly population, that means there are more people here who have late onset hearing loss, doctors should know how to communicate with us. Oh who am I kidding, many doctors don’t know how to communicate with anyone, hearing or not.
The vertigo has gotten worse. Ironic thing, I just received a letter saying my Medicare benefits are being reviewed, right after that my vertigo started going crazy! When I finally got Medicare my symptoms started getting better, not immediately, gradually, but it was better. Was it the extreme stress of feeling like a burden, and the fear that if something happened to Stuart I wouldn’t have insurance or any income, causing my vertigo to be worse? I have no idea, all I know is that I’m having vertigo again, often, and I’m really upset about it. I’m even using my walker again, not every day, but I’m definitely getting use out of it again. I think buying a car was tempting fate, the last time I got a car I got worse….you can see how my mind is just spiraling. I’m so tired.
To top it all off, I’ve been dealing with some of the worst rage episodes I’ve had in a long time. I started taking estrogen about 2 weeks ago for menopausal symptoms, I’m thinking that could be it, but since I have Bipolar Disorder it always concerns me. I do have a call into the doctor, let’s hope we can figure this out before I kill someone.
Speaking of my mental health, my psychiatrist had gene testing done to help determine which drugs are best for me. The results are very interesting. I want to share a lot of that with you, but this post is getting long, so I’ll save that for another day. If you’d like to read more about the test I had, it’s called Genesight, here’s the link to their site. https://genesight.com/
My back has started seizing again, the muscle spasms stop me from doing a lot of the things I’d like to. Like baking!
But I was able to do a little celebrating for Halloween (after a complete meltdown on Halloween day, the night turned out pretty good.)
Here’s a few photos of my makeup, one from a festival we went to on Friday and the other for Halloween night to give out treats. Halloween night wasn’t very inventive, it was the end of a very long and emotional day, so my makeup was not what I had planned.
I hope your Halloween was a hauntingly good time.
I’ve been having a hard time writing lately, I may be writing more journal type post, I think I need to get more of this stuff out.