It’s been a while since I’ve written a simple update about me. Other than the migraine scenario.
What’s going on right this second? My head hurts! Yes I’m still fighting migraines. I’m also having vertigo again, every day for the past week. Yesterday I had it all day long! It would go absolutely crazy, then it would slow to just barely moving, then it would go crazy again. This went on for 12 hours. I’m starting a regimen of steroids. I don’t like being on steroids because they think that may be what caused the Avascular Necrosis in my hip, but I’m desperate. My headache speicalist and my ear doctor both agree that steroids is the best thing to stop this cycle. So here we go again.
I finished my Vestibular Rehabilitation Therapy. It was a great experience. I hope it did a lot of good. I say hope because I wasn’t having much vertigo when I was going through therapy. I was amazed at how well I progressed through the exercises. On the last day, I had a vertigo attack start right there in the exercise room. All I could do was hold on to Stuart and my therapist and squeak out, “I want to go home.” A wonderful way to close out an otherwise great experience. Since that last appointment I haven’t been able to do any of the exercises without falling. I’m sad and pissed.
I’ve decided not to do the gentimicin injections. There are so many risk. When I’m at my worst I will think I don’t care about the risk, I’m willing to try anything, but I just went through a month of very little vertigo. If I have the gentimicin injections I may never have good days. I might not be able to learn how to balance without my ears. And it does nothing to stop the vertigo caused by migraines. What if most of my vertigo is migraine related? I would still have vertigo and have to fight having no balance system in my ears.
My new ear doctor is thinking about trying steroid injections in my ears to see if it helps. (one ear at a time) But we will wait until I’m really bad again. (If things keep up like this past week, we’ll be talking about this fairly soon.) Steroid injections don’t carry the risk that gentimicin does. It wears off, so if it works it often has to be repeated every 3 months. Since they think my Menerie’s is autoimmune, this is a good diagnostic tool, and if it makes me feel better, great. Therefore, this is a good thing to try before deciding on gentimicin. My new doctor is not a fan of gentimicin, but did not say he wouldn’t rule it out as a very last resort.
I’m sad right now. Things aren’t going well. Too many times I feel I’m saying, “I’m having a bad day.” There have been days I’ve been so angry I felt like I didn’t know myself. For the first time in a long time, I feel handicapped. I hope all of this is part of my health not doing well, added stress and maybe menopause. Not my bipolar medication taking a nose dive. We’ll have to wait and see.
I have a couple of questions for those of you who have seen a naturopath or holistic doctor; Did seeing one help you? How did you chose which one to go to? I’ve been thinking about seeing one to try to get my over all health better, but I have no idea how to figure out who to pick.
As always thank you for supporting and caring about me.