Update 5.10.2016

bird on handicap sign.jpg

It’s been a while since I’ve written a simple update about me.  Other than the migraine scenario.

What’s going on right this second?  My head hurts!  Yes I’m still fighting migraines.  I’m also having vertigo again, every day for the past week.  Yesterday I had it all day long!  It would go absolutely crazy, then it would slow to just barely moving, then it would go crazy again.  This went on for 12 hours.  I’m starting a regimen of steroids.  I don’t like being on steroids because they think that may be what caused the Avascular Necrosis in my hip, but I’m desperate.  My headache speicalist and my ear doctor both agree that steroids is the best thing to stop this cycle.  So here we go again.

I finished my Vestibular Rehabilitation Therapy.  It was a great experience.  I hope it did a lot of good.  I say hope because I wasn’t having much vertigo when I was going through therapy.  I was amazed at how well I progressed through the exercises.  On the last day, I had a vertigo attack start right there in the exercise room.  All I could do was hold on to Stuart and my therapist and squeak out, “I want to go home.”  A wonderful way to close out an otherwise great experience.  Since that last appointment I haven’t been able to do any of the exercises without falling.  I’m sad and pissed.

I’ve decided not to do the gentimicin injections.  There are so many risk.  When I’m at my worst I will think I don’t care about the risk, I’m willing to try anything, but I just went through a month of very little vertigo.  If I have the gentimicin injections I may never have good days.  I might not be able to learn how to balance without my ears.  And it does nothing to stop the vertigo caused by migraines.  What if most of my vertigo is migraine related?  I would still have vertigo and have to fight having no balance system in my ears.

My new ear doctor is thinking about trying steroid injections in my ears to see if it helps. (one ear at a time) But we will wait until I’m really bad again.  (If things keep up like this past week, we’ll be talking about this fairly soon.)  Steroid injections don’t carry the risk that gentimicin does.  It wears off, so if it works it often has to be repeated every 3 months. Since they think my Menerie’s is autoimmune, this is a good diagnostic tool, and if it makes me feel better, great.  Therefore, this is a good thing to try before deciding on gentimicin.  My new doctor is not a fan of gentimicin, but did not say he wouldn’t rule it out as a very last resort.

I’m sad right now.  Things aren’t going well.  Too many times I feel I’m saying, “I’m having a bad day.”  There have been days I’ve been so angry I felt like I didn’t know myself.  For the first time in a long time, I feel handicapped.  I hope all of this is part of my health not doing well, added stress and maybe menopause.  Not my bipolar medication taking a nose dive.  We’ll have to wait and see.

I have a couple of questions for those of you who have seen a naturopath or holistic doctor; Did seeing one help you?  How did you chose which one to go to?  I’ve been thinking about seeing one to try to get my over all health better, but I have no idea how to figure out who to pick.

As always thank you for supporting and caring about me.

 

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11 thoughts on “Update 5.10.2016

  1. I cant afford to see those so I haven’t gone, if you can afford it it might be worth checking out. Have they tried niacin? I heard it is suppose to help. I hope you feel better.

    • I have tried Niacin, and the whole regimen of vitamins that are supposed to help. Plus supplements and all that stuff. I haven’t been able to afford seeing an alternative practitioner either, so I’ve never gone. I’m very unsure about it all.
      a deficiency in many of the B’s can cause tinnitus, so I went on that group of supplements. And there are some that can cause vertigo, if you are deficient in B12 you can get vertigo. I do get B12 shots every 3 weeks. I take a mutli vitamin, extra magnesium…for headaches (yes it is working so well huh?) and Biotin for my hair (it has gotten so thin since I’ve been sick, the Biotin has helped, not necessarily grew any back but stopped losing it.) 🙂

      Thank you for the well wishes. I’m ok, just in a slump.

      How are you doing?

  2. Heard good things about the holistic/naturopathic approach to healing. You could check out sites about see who is listed. Also, when I saw a naturopath, I paid on a sliding scale based on income and health expenses.
    I think a relapse seems worse as having felt better, feeling worse drains so much more from you.
    {{{{{{{{{{{hugs}}}}}}}}}}}

    • I looked and there are a slew of those practitioners around here. I have no idea who I would trust. If I don’t feel better about it, I’m not going. I don’t want to go to someone to have them just try to sell me supplements.
      I went to a chiropractor once who said he could cure wheat allergy, he just had to put wheat on my tongue and build up the tolerance. What? do you want to kill me? He would have me hold out my hand and ask me to hold it right there and he’s push on it and it would go down, then he’d so something and have me do it again and it would stay up longer….as if he couldn’t be adjusting how hard he is pushing my arm down. Really? This proves nothing.
      umph.
      I’ve heard great things from people who have seen alternative healthcare practitioners, I know there are some good ones out there, I don’t know what to ask to find out if the one is. I don’t know how to find a good one.
      thank you for the hugs…..I’m sending some your way!!! {{{{{{hugs}}}}}}
      xo

    • I woke up today and told my husband “I feel great let’s go run around the block!” so I think they are working! haha
      This is just another sign that my Meniere’s is caused by autoimmune. I sure don’t want that, but it does make a lot of sense.
      The headaches are better and so is the vertigo, balance…ect. I’m a happy camper today. Think I’ll clean the house. LOL
      Thanks for the encouragement.
      You don’t have time to drop by here, you have a dissertation to finish!
      Hugs back at ya!

  3. Pingback: A quadruped amputee not stopped from wanting to achieve her dreams | From guestwriters

  4. I can’t even imagine a holistic doctor. I’d be curious to meet one. I had one who also did western medicine stuff when I was being first treated for Lyme disease but she also retired mysteriously…this was years and years and years ago but still. They seem like fairies.

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