I think my name should be Ickis!

I’ve decided my name should be Ickis.  (Not to be confused with this the Nickelodeon star, from Aaahh! Real Monsters.)

Ickis! Photo courtesy of Nickelodeon' Aaahh! Real Monsters!.

I wrote on June 10th that things were much better, that the tinnitus had reduced and my hearing had returned.  I’m happy to say that the tinnitus is still tolerable, but the hearing in my left ear was up for one day.  On June 11th it dropped drastically again, and it hasn’t improved.  I feel icky!

I don’t know what is going on, but I’m so tired.  Believe me, when I say I’m tired, I don’t just mean that I’m tired of what is going on, I mean I am exhausted.  I have to force myself not to sleep.  All I want to do is sleep.  It’s a bit disconcerting.

For those of you with Meniere’s, you know that icky way you feel after an attack?  How exhausted you are?  Feeling off-balance, and well, just icky?  That’s how I’ve been feeling for a couple of weeks now.

But I’m also having some of the symptoms I have right before I have an attack.  The hearing drop, the increased tinnitus (although not as bad as it was), the full feeling in my ears, and feeling off-balance.  Ick!  I feel like I’m on constant alert, ready for an attack, afraid to do anything for fear of spinning.  I don’t want to go far from home, and I sure don’t want to drive.  But it’s been going on for so long now.  Am I just going to feel like this and nothing happen?  Or what?

Now today, I’m having diarrhea again.  Not to be too graphic or anything…but my butt hurts!

Ick!

I think I’ll take a nap.

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8 thoughts on “I think my name should be Ickis!

  1. Sorry, Wendy! Do you think you accidentally ate something? Or is this out of the blue?

    Have you ever tried antivirals for your MM? Just curious. I have been feeling great the past 3 days. Like really, really good, almost normal good. Might just be an exceptionally good few days, only time will tell. But I have to wonder if I am going to respond to the famciclovir and that is why I am feeling well. It will be a week tomorrow since I started it, so too soon to know.

    I sympathize with you and your pre-attack MM feelings. I hope they pass without incident. In the meantime, hope you can get the rest you need.

    Take care!
    Angelea

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    • Angelea, Yes, I tried antivirals, (I’m actually on 500mg of Valcyclovir every day, for herpes suppression). Hasn’t done a thing for my Meniere’s. I sure hope it works for you!

      So far as the diarrhea, yeah it may be something I ate. With all my food issues, that’s easy. Also could be because I had to have a phenergan suppository the day before, or all the stress, or because I started my period today. That usually messes me up. The fun never stops around here! (seriously though, I’m much better than I used to be! So I really hate complaining.)

      Thanks for all the well wishes! w

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  2. Ick indeed! Poor girl. I know how you feel. The exhaustion is overwhelming at times, and it is difficulty to explain to others. I know for me I don’t want to seem like someone who is always complaining of being tired, but it’s more than just tired.. complete physical and mental exhaustion, lasting sometimes weeks as you have noted Wendy… it’s not fun! I had a spall yesterday, so today am in the same icky boat as you. I’m not sure if it’s entirely gone, but I had to take my chances on coming to work. Writing this is a little challenging actually, since I am still a bit spinny, but hopefully it fades away as the day goes on. I am supposed to have an appt. at the bank this afternoon, but I am thinking I will re schedule, as the only thing I can imagine doing after my work day today is going home and napping!!

    I am curious how you notice when your hearing has dropped… I am sure mine fluctuates, but I never seem to notice, until I am lying down with my bad ear up and realize how quiet everything seems… then when I roll over and have my ‘good ear’ up, I realize I can hear the TV in the next room, or the neighbours downstairs! The difference is normal, but always seems more pronounced when I am in the middle of a spell. I don’t notice changes in my hearing from day to day, though I am sure they happen.

    Hope that you find some relief soon Wendy… but in the meantime, know that you’re not alone!!

    Katie

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    • Katie, It’s really easy for me to notice when my hearing drops. I have bilateral Meniere’s, and can’t hear much at all in my right ear without my hearing aids, with my left ear I can usually hear something without them, but when my hearing drops I can’t hear much at all. Also, my hearing aids play a little tune when I turn them on…5 distinct notes. If I don’t hear those I know something is up. For the last couple of weeks I’ve only been able to hear 2 dings in my left ear and they sound tinny.

      Before things were this advanced it was harder to tell. I usually noticed that the fullness would get more pronounced then I would close one ear and listen, then the other. (It was usually my right ear then. But since the endolymphatic sac surgery my hearing in that ear has been stable, and no attacks from that ear.) I would also get this sharp ringing in my ear, more than the normal tinnitus, and it wouldn’t last long, but it usually told me something was up.

      I’m not glad it happens to you too, but I’m so glad you said that the exhaustion hits you too. I’m so tired. Today has been a bit better, I’m not fighting every second to stay awake, but I’m still too tired to really do much.

      I hope you feel better soon. I know you’ve been having a rough time of it for a while now. Good luck! And thank you for sharing. w

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  3. There must be something in the air, right? (she asks hopefully.) I got dizzy walking home from the grocery store about 2 weeks ago. The dizzy part was unusual for me. Being unbalanced is my norm. And the extra stress of Stuart being sick wouldn’t have helped matters,either.

    How is Stuart doing these days?

    I hope the all the ickiness ends for you soon. As for your butt…I feel your pain. Been there, felt that. Hope that goes away quickly, too.

    Maureen

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    • Maureen, Thank you for asking about Stuart. He’s doing great. You’d never know anything happened to him. He’s going to get another opinion from my Neurologist on July 1st. It will make me feel better.

      *blush* the butt feels better today. : )

      But have some more stress. I’ll write about it later. But dang, when it rains..you know.

      hope you never have another dizzy spell. best to you w

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  4. So sorry to hear you are not feeling well. It sounds like you have what I call “slosh head”. You’re not spinning but feel like you are walking around in a half daze, careful to not turn too quickly and of course the anxiety that comes with it. Sometimes extra allergy meds or cold and sinus meds help me when I am feeling like that. It has been a super bad spring for allergies so you never know. I don’t have the regular reactions to allergens: no running nose, very little itchy eyes, but my head does start to feel “wonky”. Give it a try if you can. I know we are all on so many different diets and meds that you certainly don’t want to try something else but if it doesn’t hurt, perhaps it will help? Hope you feel better soon.
    Deb

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