mini update…it’s all about me

20180902_140241It’s Labor Day, for most it’s a time to a honor the workers of America, and send the summer off with a bang.  For me, Labor Day this year marks my 14th wedding anniversary.  I can honestly say, I’d marry this may again in a minute!  It sure doesn’t feel like our wedding was 14 years ago, yet, it feels like we’ve known each other forever.

We had planned to go on a day trip to just get away, but things haven’t quite turned out as we’d planned; maybe we’ll make it there soon.  Instead we went to the botanical gardens here in town, it was like walking into a secret garden, I really needed to get out and commune with nature.  I’m so glad we Stuart talked me into going.

(I’m actually starting to get sleepy, but I really wanted to post this now, so I haven’t read over this, please excuse any and all errors, if something doesn’t make sense, let me know.)

sleep: After reading the comments left of my post about my lack of sleep and extreme fatigue, I have tried a few things and I think I may have discovered a couple of things that may have been contributing to it.

  • One – allergies.  It was suggested that this might be the case so I checked looked up what might be causing that, and found out that ragweed is causing MODERATE pollen counts.  I’m very allergic to ragweed, so I increased my antihistamines and have been doing a saline spray.  I wish I could use a Neti Pot but it causes vertigo.
  • Two – mood swings.  Someone mentioned that when she is feeling the way I have been that she knows she is a bit manic.  Well that sent up bells and whistles.  I realized just how quick to anger I have been lately.  I’ve been cutting myself off from people.  I am trying to make an effort, but it has just been so hard.  I’m simply having a hard time putting forth the effort.  I’m sorry I’ve been neglecting my people.  I’m also having uncontrollable crying spells.  Today (I’m wring this on Sunday night) I just couldn’t stop my eyes from leaking.  It annoyed the hell out of me.  So, have I been a bit hypomanic, that would cause the anger and the lack of sleep, but it doesn’t explain the tears.  Could I been depressed?  Is it possible to be experiencing both at the same time?  After being diagnosed with bipolar I over 22 years ago, you’d think I could figure this out, but I must admit my moods have not been as stable this past year as they have been for many, many years.  I’m not having full blown mania or severe depression, but I’m having a very hard time coping.  I’m also having a very hard time holding my tongue, and unfortunately I have been hiding how I’ve been feeling from almost everyone (I do share these things with Stuart, we are in this together) including someone who is causing me some severe anxiety.  I’d really like to cut this person out of my life, but it’s just not possible, at least not right now.  I’m trying hard to just let it go, and be gentle with myself.  I understand that I’m really getting upset because this person is not behaving as I expect people to, it is these expectations that I have to let go of.  But the drama is affecting other people in my life and that is causing me more anxiety.  I’m sure most of that makes no sense, but it felt good to get it out, even if it is a little cryptic.
  • Gabapentin – I’ve been taking 100 mg of gabapentin 3 times a day for a while now, and it hasn’t really bothered me.  I take 200 mg at bed time and 100 mg upon waking.  If I don’t take this my arm goes to sleep and aches, my back hurts more and my aches and pains are more intense.  Since moving here I’ve needed to refill my prescription a couple of time and I noticed that the manufacturer is differnt than the one who supplied my pharmacy in NC.  I can’t help but wonder if that changed things.  so for the past couple of days I haven’t been taking my morning dose and honestly I haven’t been nearly as sleepy during the day. That’s unfortunate because my pain has increased quite a bit.
  • Stress and anxiety.  We’ve talked about this before, but I have spent a number of hours awake lately when I simply could not shut my brain off.

What I discovered was not an issue.  My use of medical marijuana.  For the most part I’ve been using mostly CBD during the day. You can read recent studies on sleep and CBD on NCBI  To make sure the CBD was not causing my insomnia and/or my daytime fatigue I decided to stop taking it for a while.  After 2 weeks I saw no difference with my sleep, but did notice an increase in my headaches and anxiety.  I haven’t been using any cannabis with THC duing the daytime.  I have still been taking it right before I go to bed, it does help me sleep for about 4 hours at least.  (note I’ve been using marijuana to help me sleep for a couple of years now)

Increase in physical symptoms: I’ve been much better for a while now…my vertigo has been almost non-existent at least 9 months now.  This past week, it has been worse again.  I haven’t been having full rotational spins for the most part, but I have been seeing things move and I feel like I’m moving.  I’ve had a few spells this week that caused Stuart to come home early to help me.  I haven’t thrown up from vertigo in quite some time.  Even before I stopped having vertigo on a regular basis, I had stopped vomiting.  I normally use a little cannabis to stop the nausea and vomiting, but I was trying hard this week to not do that, I wanted to make sure it wasn’t causing me to lose sleep.  Well, it wasn’t and I will be using it to help with the vomiting the next time I have vertigo.  My migraines have also increased, and I don’t feel like the gammaCore is doing much.  That makes me sad.  To be completely honest, I’m having a very hard time staying in the present and not freaking out over the thought that I might get back like I was.  I’m already afraid to drive again.  Shoot.

House search: We still haven’t come close to finding a house that is suitable, there just aren’t very many houses that have the features we want/need.  Now we’ve found a little snafu on our credit report that we need to clear up.  It’s sad when someone has a credit score of over 800 and the ability to put down a down payment of over 20%, and we are having trouble getting pre-approved.  There’s something wrong with that picture.  We are hoping we can get it straight soon.  If not we’ll just rent for a while. I’m trying hard not to stress over it.

Eating:  I still feel like food is controlling my life.  I recently had a week where I wasn’t starving all the time and I was able to stay in my calorie range.  I’m terrified of gaining all that weight back, yet I can’t seem to stop eating, and that is simply tearing me up inside.  I did find a cool app called Mealime and it has been a great help in planning meals that are pretty easy and healthy too.  Now if I could just control the snaking, especially in the middle of the night.  How did I go from having to force myself to eat, to overeating?

Doctors: It has been a challenge finding doctors here.  Most of the doctors I found on the BCBS site who said they were accepting new patients actually weren’t.  I do like the PCP that I found, except for a couple of things, I’m hoping those things will resolve themselves after we get to know each other better.  (like she isn’t comfortable prescribing my Valium for the vertigo.  I don’t take if often, but if I’m having vertigo that is the only thing that helps calm it down.  I do not take it as an anxiety medication, nor do I over use it.  My last prescription of 90 pills lasted me almost a year!  She doesn’t seem to understand that it is the best vestibular suppressant out there.  I will have to find an ENT.  I want to see a neurotolgist here in town, but he only sees patients that have been refereed by an ENT.  So I have to find one of them first.  Argh, what a pain!  I am hoping he can treat both my Meniere’s an my migraines though, so I really hope I can get in there to at least talk to him and see if he can offer any help at all.  I do like my neurologist now, well what I learned in my first visit to see him anyway, but I do not like how hard he is to get in touch with, nor do I feel like his staff is very helpful.  Recently I had a seizure, my first in a very long time, the next day he called my neuro and left a message about it.  No one ever called back.  I had a seizure and NO ONE CALLED BACK?!?   The doctor who operated on my wrist was not as thorough as I felt he should have been.  Every time he was in the exam room with me I felt he was always on his way out the door.  I didn’t feel like he answered all my questions and I didn’t feel like I had clear enough discharge instructions.  He also didn’t even talk with Stuart after my surgery.  Talking to me right after I wake up is not a good time to expect me to retain information.  They did send me a survey to fill out and I spoke up about my feelings, I’m proud of myself for that. I was told by the resident who took my stitches out that I could have pain from the healing for a year. wow!  Didn’t expect that one.

That’s all for now….I guess that was a bit longer than a “mini update”  perhaps I should have called it a “maxi update”  🙂

*photo taken by W. Holcombe at Tucson Botanical Gardens, Tucson, AZ – all rights reserved.  Please do not copy without permission.

 

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Eyes Wide Shut

I’m so tired.  I’ve experienced fatigue before, but nothing like this.  I can’t stay awake, except at night, when I can’t sleep.  I’m restless, yet I can’t get it together.  I started exercising more this past month, but this past week I haven’t been able to do more than what is absolutely necessary.  A little while ago I put some dishes in the dishwasher and now I’m ready to take a nap.  I am having a very hard time keeping my eyes open.  Lifting my limbs is a challenge.  This in conjunction with extreme brain fog, yes writing this post is a challenge, it’s also why I haven’t been able to follow through on promises made.  I really hate that.

What changed?  I honestly don’t know of anything that has changed so much in the past week that would cause this.  I don’t think I’m sick.  I’m not running fever or anything like that.  My headaches haven’t been worse, they aren’t better, but they aren’t worse.  I haven’t increased my medication.  I am taking CBD oil during the day, but I’ve been doing that for over a month now, so that’s not new.  I’ve actually been taking less this week because I keep forgetting.  As it has been pointed out to me countless times by numerous people, I have been under a huge amount of stress, but honestly, the stress hasn’t really intensified recently, it’s been pretty steady for months now.  I’m dealing with it pretty darn well, if I do say so myself.  The only thing that has my mind racing is our house hunting, it’s taking longer than we expected, and it’s just getting to me a bit.  I’ve decided to step back from the search for a few days at least, a bit of breathing room, get refocused and start again next week.

I’ve been using marijuana to help me sleep for a long time.  (full disclosure, I was using it long before we moved to a legal state)  for some reason it’s not working like it used to.  I can’t sleep, yet I can’t stay awake, what’s up with that?  When I try to go to sleep at night I just toss and turn, often I just give up for a while and get up.  It’s hard not to snack in the middle of the night when you’re up all night.  OK, I’m exagerating a little, I am sleeping …some…

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My sleep last night recorded on my Fitbit.

Okay, my brain is not working.  I’m about to fall asleep…probably not really, but I feel like it.  It is storming like crazy right now.  Monsoon season is almost over, as much as I’m tired of the storms every day, I’m going to really miss them when we go for months with no rain.  Plus, they are really cool.

Some reasons I might not be sleeping…hmmm….pain.  My wrist is getting better, I’m not having those horrible sharp pains and I have much more range of motion.  I can pick up dishes without extreme pain! That’s awesome!  But, now it hurts all the time.  The pain is not as intense, but it’s always there.  I bought some CBD salve yesterday and I’m rubbing it all round my wrist and hand, not the actual surgical site yet, I get my stitches out on Friday. after that I’ll rub it all over.  Cross fingers it helps ease the pain a bit.  I feel silly complaining, it’s not that bad, it’s just constant.  (sometimes I do still have some sharp pains, I was just reminded of that a few moments ago when I tried to help with dinner)

Thank you all for listening to me rant.  I do accept that this is the way it is right now, but that doesn’t mean I shouldn’t try to figure out what is going on and take care of myself the best I can.

Any suggestions?

 

 

 

 

Finally! It Arrived!!

Just in time for Ten Things of Thankful I received something to be very thankful for indeed!

My gammaCore arrived!!

I’ve been having a heck of a time with fatigue and migraines, so this little gem was met with much joy!  I’ve used it a few times already today, I can’t say for sure how much it has helped yet because I used it in conjunction with other medications, but I can say that my migraine did get better!  Yay!!  There’s a lot of drawbacks about this little thing, like how long it took to get it here, it isn’t rechargeable so you have to get a new one every month, (that’s a lot of garbage!) and it stops working in a month even if you haven’t used it hardly at all.  They really have a racket going on here….but if it works, how I can not use it?  I’ll do an update on it soon!!

There are a few more things I’m thankful for this week:

  • the kindness of friends (and some strangers).
  • not having to go to work every day, because I wouldn’t have been able to lately.  (never thought I’d be thankful I’m disabled…I’m just differently abled)
  • we’re looking for a house, this is not a fun experience, but I’m so grateful we are able to buy our own home and hopefully soon we will find the perfect place for our family.
  • we were able to babysit last week and we didn’t die, nor kill anyone. hahaha
  • my niece is reading a book and telling me all about it. (she literally just texted me before she went to bed.  She’s 10)
  • I didn’t throw up in public.  Okay that sounds strange but we were out on Sunday and I took a swallow of water while we were walking and suddenly I got choked.  I coughed and gagged and water spewed out of my mouth and nose, I was so embarrassed, but I didn’t throw up, that was a victory!!
  • we have A/C.  We live in Tucson, AZ; if I didn’t have A/C I would die. That’s not an exaggeration.
  • I’m not homeless.  There is a huge homeless population here, it really makes me realize how very lucky I am.  (and it annoys the heck out of me that so many people here assume that all homeless are addicts!  Really?  Wake up people!  It can happen to anyone!)
  • I was able to get a topical ointment for pain from the medical marijuana dispensary today.  It is all CBD, so anyone could buy it, but I like getting it from the dispensary because they independently test everything so I know it has what is says it does in it, and the girl that I talked with there today was so knowledgeable!  I’m learning so much.  I’m hoping the ointment will help me sleep tonight, my wrist/thumb have been keeping me up at night.  (Don’t worry dear friends, it’s healing nicely, it just takes time).  I also got some gummies to help me sleep, they do have THC in them so unless you are in a legal state you couldn’t get them.  I’m very grateful I live in a legal state.

 

That’s all for now.  I have been writing a post on my experiencesgetting my medicinal card and my first trip to the dispensary.  I’m sorry it is taking me so long, recovery has been easier than I expected, but it has made me very tired; it is a struggle to get things done and sometimes the pain won’t allow me to type long.

Thank you all for hanging in there with me.   I’m very thankful for you.

What are you thankful for this week?  I’d love to hear about it.

Check out the rest of the participants in the TToT challenge, and perhaps join us, reading what others are thankful for always fills me with such joy.

TToT

Stress? Who’s stressed?

I swear if I hear one more person say that something that is wrong with me is due to stress I will scream!  I have felt this way for many years.  When I was having vertigo daily they said it was made worse by “stress”.  When my asthma went crazy, they said “stress”.  When I had severe GI issues for months, I was told I needed to reduce my “stress”.  You know the last time I looked stress does not cause Meniere’s Disease, or allergy onset asthma, or fructose malabsorption.  Don’t get me wrong, I know stress can do a number on you, but I feel like it’s a catch all.  If they don’t know, then it’s stress, after all if they can’t fix it then it has to be MY FAULT.

Finally, I am having issues that I think may actually be caused by stress.  I will be the first to admit the last few months have been pretty stressful.  My mother-in-law was placed in long term care, we moved across the country, I left my sister with the understanding that we may never see each other again, Stuart started a new job, I’m finding new doctors, I have to have surgery on my wrist on TUESDAY, I don’t know how long to expect to be out of commission to recover from said surgery (I hate being so dependent, not having use of my dominant hand is hard), we’re looking for a house (and not finding what we want), we’ve been looking at cars (for me),  I’m starting to drive again, we’re living in a small house that I can’t get organized because we don’t want to get too settled since we will be moving again soon, I’m suddenly surrounded by family (some of that’s good, some not so good)…………….WOW. writing all of that out was stressful, and I haven’t listed everything.

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This is me with a migraine, the right side of my face gets all numb and droopy.  #realmigrainepose

For over a month my migraines and cluster headaches were much, much worse, is this because of the stress, or is it causing more stress….short answer, Yes.  I must say though, for the past week they’ve been getting better, I think it’s because of the medical marijuana I’ve started using (more about that soon).  I’m having some GI issues that just don’t want to stop.  (it’s even waking me up at night, and I haven’t made it to the bathroom a couple of times…is this all from stress, who knows, but I doubt it’s helping),  I’m irritable, quick to anger, and just plain grumpy.  I’m overwhelmed and in pain, and I’m taking it out on everyone else.  I don’t like myself right now.  My anxiety has increased, but it’s not too bad, yet.  I’ve been a little depressed, but it’s not all consuming.  So, there’s a lot to be stressed about and it’s kind of taking it’s toll.

I’m trying to meditate every day, but it seems the more stressed I am the harder it is for me to meditate.  I feel like I’m not being very mindful either.  I’m living too much in the future.  We are buying our forever home and I keep thinking things like, “I don’t want a pool because I don’t want to keep it up when I’m 70”, “I don’t want any stairs because I might get sicker again, and I also we might now be able to climb stairs in a few years.”, and my personal favorite, as I’ve been going though things and deciding what to keep I keep thinking, “will anyone care about this when I die?” ….I just turned 55, I’m not that old, but I sure am living like I am.  (except I want a cool yellow car, that will keep me young)  I worry about how M’s condition will advance.  I worry about Dad, he spends all his time at the home what M, and she’s beginning to have moments where she doesn’t remember who he is exactly.  How is he going to handle it when she no longer knows who he is.  Then I think about what M’s daughter said, she told me about another relative who had Alzheimer’s and how they told her that they may not know who she is, but they know they love her.  I think Margaret will always know she loves Dad.  It breaks my heart every day though to see this amazing woman slip away.  (she just turned 77)

I really want to get back to focusing on living in the moment and simply not worrying about the rest.  Why worry about the now? It’s going to be gone in an instant.  I want to invite joy in my life.  I want to step away from the drama that I’ve found myself dropped into.  I need to nurture my inner self.

Little update on me: My surgery is scheduled for Tuesday, the 7th.  It is a minor surgery, I’m not even put under general anesthesia.  They just put a little incision on the inside of my wrist below the thumb (on the side, not the palm) and snip a little to release the tendons.  When I saw the doctor in Charlotte, NC, he told me that often when the injections don’t do anything that there are actually 3 tendons running through the sheath instead of 2.  He said they don’t know why but it often doesn’t show symptoms until middle age.  This is even more probably since I have it in both wrist, luckily the injection worked pretty well in the left wrist though.  The doctor here didn’t mention it, but he did comment that the orthopedics department at Atrium Health (formally known as Carolinas Heathcare System) is one of the best in the country.  (right now they are ranked number 3)  So I kind of believe the doctor at CHS.

My migraines have improved some since I started using medical marijuana.  Most of what I’m taking is a very high grade of CBD oil.  I will write a post soon telling you all about my journey through getting a card, learning what to buy, and my experience in the dispensary.  The gammaCore has still not arrived.  The doctor’s office dropped the ball when ordering it, then they didn’t put in the request for the free trial for the first month.  (they did change offices this month, and my doctor is new and has been the only doctor in the group to prescribe the gammaCore, all of those factors led to the good up)  The gammaCore company called Stuart last week and told him that it should be no problem getting it approved by my insurance.  If that is the case, why haven’t I received it yet?  I sure could have used it this past month, the cluster headaches have been killer (literally, if I thought I had to live in that kind of pain all the time, I’d kill myself.  Cluster headaches are called Suicide Headaches, because of that very reason, people will kill themselves to get relief.  I start Botox in about a month; I was supposed to start on Thursday, but that was my original surgery date so we cancelled it.   The monsoons are causing a lot of severe barometric changes almost daily, I’m sure this has been one of the reasons my migraines have been so bad, so hopefully they will get much better in a month of so, when the monsoons are over.

 

It’s late and I have a headache, so this post was not even read over to check for errors, please forgive any typos, grammar errors, or other atrocities.

 

 

 

 

Migraine Awareness Month, my migraine update

migraine awareness

I don’t know who to credit for this image, but it is so true I had to use it. If you know who I should credit, please let me know.

June has been Migraine Awareness Month.  I had planned to do a few posts about migraine, what it is, who gets it, how disabling it can be, new treatments….ect… unfortunately I’ve been having some severe migraines this month and simply haven’t been able to focus well enough to write and get all the facts straight.  It’s not just the pain of the migraine that has stopped me, it’s all the other symptoms that go with it, the fogginess, nausea, insomnia, sensitivity to light, sound and smells….I simply can’t concentrate or get things done.

New Migraine Doctor – On Tuesday I saw a new migraine specialist.  He’s with Banner Health/University of Arrizona’s neurology department.  First impression, he was pretty thorough, and seemed to know what he was doing, however, there were some things he said that I felt were just rude, but it may just be his sense of humor that I didn’t get.  For example, after we went through my history he looked at hubby and said, “Did you know she had all these issues before you married her?”  Then he laughed a little and said he was joking, but honestly that did not make me feel good at all.  But he did take the time to go over my records and listen.  At first I felt that he was going to be a butt, because when I told him all my different types of headaches (chronic migraine, vestibular migraine, cluster headaches, and Intracranial Hypertension), he said, “I don’t believe it”  He questioned if I could have Intracranial Hypertension on top of the rest.  I told him I had numerous lumbar punctures and that diagnosis came from Duke, he seemed to understand then that I really have been diagnosed with these things, they weren’t just speculation.  We went through a huge list of drugs I’ve tried and if they worked at all, and we discussed other treatments that haven’t worked (acupuncture, chiropractic, a ton of supplements….).  He finally said, “So, it sounds like nothing has worked” and I agreed.  (Oh, I was given a complete exam, testing all my reflexes, checking my optic nerve….he really was thorough)  He left the room for a moment and came back with a gammaCore.

gammacore

image courtesy of http://www.gammacore.com

Using the gammaCore – The gammaCore is a non-invasive vagus nerve stimulator.  It’s pretty darn cool actually.   Most of what I’m including next can be found on the gammaCore site, you can read more about it there if you’d like.  https://gammacore.com/

“gammaCore (nVNS) sends gentle, patented stimulation through the skin to activate the vagus nerve, providing relief from migraine and cluster headache pain in a different way than drugs.

  • The vagus nerve is an important highway of communication between your brain and many parts of the body
  • The vagus nerve plays an important role in regulating pain”

He gave me a demo and it was interesting.  You take this little device and put a gel on the electrodes then place it on your neck, right where you’d check someone’s pulse, you increase the signal until you get the results you are looking for (a twitch of your mouth or side of your face) you keep it there for 2 minutes and it cuts off by itself.  They say there’s a beep, but I can’t hear it, I just notice that it stopped, I don’t know why you’d need a beep to tell you that it stops, you can feel it.  People like to give sounds for all kinds of things that really don’t need them, in my opinion anyway.  After it stops on one side, you repeat it on the other side, and that’s it.  That’s a treatment.  If pain persist after 20 minutes, do it again.  After 2 hours, if you still have pain, or if it returns, repeat a treatment.

I will be receiving my gammaCore in the mail in a few days.  The first month is free, I don’t know how much it will cost after that.  When it was first approved earlier this year Stuart called to see if insurance would cover it and they weren’t there yet.  If it helps, I sure hope that insurance will cover at least part of it.   You are supposed to use it at the first sign of migraine pain, unfortunately I am NEVER without a headache, so I need to use it at the first sign that it’s getting bad.  I still don’t feel that the doctor understood that I have a headache ALL THE TIME.   I actually plan on using it as often as I can to see if I can get some lasting relief, maybe I’ll actually have a day without a migraine!  I am cautiously optimistic.  If it doesn’t work, I haven’t lost anything.  If it does work, I will have to decide if I can afford it.

One HUGE thing I hate about the gammaCore is that it’s disposable.  Why can’t they make it so you can charge it or change the battery or something, having to replace this device every month is so wasteful and bad for the environment.  I’m having a very hard time coming to terms with that.  I can only think that they do it this way so that people will have to buy a new one each month, that’s just a rip-off.  What am I supposed to do with all these used devices?  If nothing else, they need a recycling program.  (Yes, I will be suggesting this to them)

Medical Marijuana – I also had an appointment on Wednesday to get approved for my medical marijuana card.  Medical marijuana is legal in Arizona and severe migraine is on the list of conditions that can be treated with it, so I decided to apply.  I should get my card in a couple of weeks.

Full disclosure here, I have been using marijuana to help me for a couple of years now, but I had to rely on what I could get on the street, I don’t know the strains, or anything like that, so results have varied.  Sometimes when the pain hits I can vape a little and it is gone, other times it just makes me feel funny, and other times it does nothing.  I’m hoping that getting it from a dispensary where I will be assured of quality and will know what strains and hybrids I’m getting, I will be able to medicate more successfully; more pain relief with less high feeling would be optimal. After I started using a little every night before I go to bed (I made brownies) my vertigo has been reduced drastically.  When I can’t get it, I have more vertigo again.  This is not an approved condition in Arizona (Meniere’s is an approved condition in some states), but it should be.  I can’t be 100% sure that it’s the marijuana that has helped my vertigo, but it would be some strange coincidence if it isn’t.  It even helps stop an attack….if I start to have a vertigo attack I will vape just a little and it will often stop it, even if it doesn’t stop the vertigo, it stops the vomiting.  I cannot stress how important that is.  The only reason I will go to the ER with all of this (vertigo or migraine) is if I’m also dehydrated.  Throwing up for hours on end will cause dehydration, I know that the marijuana has stopped me from going to the ER numerous times.  I’m so very grateful I have found some relief through medicinals.

As I navigate this new world of treatment, I will post more about it and give you lots of updates.  To learn more about how medical marijuana can help with migraines there’s a great article here: https://www.marijuanadoctors.com/conditions/chronic-migraine/

Now, it has taken me many hours to write this post, so I will close for now.  Hopefully my head will calm down soon and I will be able to write more often.  I would like to thank Lorraine for being so kind and helping me keep up my weekly Mindfulness Monday posts.  They mean a lot to me and it was really hurting me when I couldn’t post.  Thank you Lorraine, you are the best, I love you my friend!!

Have any of you tried the gammaCore?  If not, would you?

How about medical marijuana, have you tried it?  Did it help?

I’d really like to know your experiences.

 

BioCBD+ “Feel the Difference”

“I have been given BioCBD+ Total Body Care as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “

CBD bottle

Simply Google “CBD” and you will find a plethora of products, it seems as if a new product is added every day.  It can be daunting to the consumer to try to wade through all of these to find what works.  (unfortunately there’s a lot of junk out there).  One way I can help is to give you my experience with BioCBD+  (please see their website here)

BioCBD+ is an American company, located in Encinitas, CA, that sells CBD (cannabidiol) supplements. CBD is a non-psychoactive part of the cannabis sativa plant.  (you can read more about cannabidiol here.)  “BioCBD™ is derived from organically grown hemp plants, and it contains all of the synergistic cannabinoids, terpenoids, and other compounds of the original plant”(BioCBD website).  Since Sanjay Gupta’s documentary “WEED”, brought the awareness of CBD and how it can help people, especially a little girl named Charlotte, whow has epilepsy.  You can watch the video here.

What makes BioCBD+ different from their competitors?  “BioCBD™ is an all natural, water soluble source of CBD plus Ayurvedic herbs (magnesium and turmeric in Total Body Care) that is more bioavailable than any CBD hemp oil products on the market.” (BioCBD+ website)  According to their website BioCBD+ never uses artificial coloring or flavoring and their products are free of soy, nuts, GMOs, binding solutions and/or solvents, and  are the only all natural water soluble CBD made without the use of solvents or glycerides.  BioCBD+’s “CBD is extracted from our special variety of industrial hemp that contains naturally high concentrations of CBD. The result is a raw oil that is high in CBD, virtually free of THC (less than 0.03%,) and complete with a full spectrum of other cannabinoids and terpenes, which work synergistically to make CBD even more effective. The hemp oil is then shipped to our labs to converted into the all natural, water soluble BioCBD™ through our patented process”. (BioCBD+ website)

BioCBD+ is a pioneer in producing water soluble CBD.  This process posibly makes their product more of a value for the money.  You can watch their video about water soluble CBD here.

CBD bioavailable

I started my first bottle of BioCBD+ Total Body Care on July 31st.   After reading about the many things CBD is reported to help, I was looking for some pain relief and possibly some help with anxiety.

This was a good time to try the BioCBD+ Total Body Care as I hurt my back and started physical therapy just a few days before. Therefore, I was able to judge the efficacy (for mr) not only on chronic pain, but also on acute pain.

The suggested use, as, stated on the bottle, is: “Start with one capsule daily and increase up to 6 capsules per day.  When desired results are achieved gradually reduce daily amount”.  I started with 1 capsule and took one a day for a week, I didn’t really notice much of a difference.  I increased the amount to 2 capsules and I started noticing a reduction in pain.  Just a little.  I wasn’t sure if it was the placebo effect or not.  In 6 days I got in touch with the company and asked how fast I should be increasing my dose, he said after a couple of days; The bottle I was given had 30 capsules, so I was able to take one does of 3 capsules and I finished up the bottle with the 2 that were left.    This I noticed.  This helped my muscle spasms.  It took the edge off of all my pain, the acute back pain and the chronic arthritis pain in my neck  *note it wasn’t a miracle, it just made the pain more tolerable..  I also noticed I didn’t have as much wide spread pain (from fibromyalgia).   I admit, I didn’t really think it was doing very much, until I ran out.  Within a few days after I ran out, I was in much more pain and I had a panic attack.  I didn’t realize how much it was helping my anxiety.  I purchased more of the Total Body Care, so I could give a more detailed review.  (The second bottle, was not given to me, I bought it myself).  There was a break of about 2 weeks before the next bottle appeared. (It took me a,title while to order it)  I once again started with 1 capsule, but I’ve increased the dosage every 2 days, until I got to 4 capsules a day.  I have noticed a reduction in pain, and my anxiety is better.  However, I’m having increased vertigo.  I had increased vertigo when taking the first bottle, then it calmed down the week I was out of it, and increased again when I started taking it again.  As my normal readers will know, I have vertigo often due to Meniere’s Disease, but I had very little vertigo for the past 6 months, until I started  BioCBD+ Total Body Care.  Unless you have a condition that causes vertigo, I wouldn’t think this would be a problem.

1 Bottle of Total Body Care is $120, 2 Bottles is $220, and 3 bottles is $300.  Each bottle contains 30 capsules.   Signing up for auto-shipments can save you a lot of money There is also a sample size available for $45, it contains 15 capsules.

BioCBD+ also has a scholarship program.  They are a “for benefit” company.  For every bottle purchased they give a bottle away to someone in need.  If you have a financial and medical need, or know someone who does, check out this program.  +Scholarship – Buy 1, Change 2 Lives.

Another great thing they have is the “Feel the Difference”  Money Back Guarantee. When you order a product you have 30 days to try it.  If you don’t like it you can return it, you don’t even have to return the product of a 30 count bottle as long as the return is within 2 months of purchase.  If you buy more than 30 capsules, you will need to return the unused product to prevent fraud.

To purchase BioCBD+ Total Body Care (or other their other products)  just follow this link:

BioCBD+ kindly offered to give my readers a 10% discount on you first order.  All you have to do is enter PICNIC10 in the Coupon Code section.  How cool is that?

Additional Resources:

 

Can Cannabidol help the NFL?

I haven’t mentioned medical marijuana on my blog, mainly because it isn’t legal in my state.  However, cannabidiol (known as CBD) is legal in the US. (at least everywhere I know of)

The following quotes are from Win The Bright Lights Fade web page on Realm of Caring’s web site.

“CW Botanicals, a pioneer in hemp oil therapy, originally developed Charlotte’s Web (a hemp-based oil rich in cannabidiol, a non-euphoric cannabinoid) as a natural progenitor for overall brain health. Containing no more THC (the chemical that causes the psychotropic “high”) than the average hemp granola bar, their hemp oil delivers precise levels of cannabinoids, naturally occurring compounds that interact with neuroreceptors in the brain and the endocannabinoid system to regulate processes such as appetite, pain sensation, mood, and memory.”

“A recent study conducted by the Department of Veterans Affairs and Boston University shows 96% of former NFL players suffer from the neurodegenerative disease known as chronic traumatic encephalopathy (CTE). CTE is widely believed to stem from repetitive trauma to the head and can lead to conditions such as memory loss, depression and dementia.”  (this was brought to the public’s attention with the movie Concussion.)

“The Realm of Caring Foundation (RoC) is launching When the Bright Lights Fade, a campaign to raise funds for a series of studies exploring how the use of cannabinoids, specifically cannabidiol (known as CBD), can help treat and prevent the onset of symptoms associated with CTE and traumatic brain injury.”

About me and cannibus….I just ordered High CBD oil to use for pain control.  It takes a little while to get the full effect as soon as I know if it is going to work, I’ll post an update.  I have degenerative arthritis in my neck.  I can’t take traditional pain medications and most have undesirable side effects for almost everyone I know.  I am hoping this alternative will help with the pain and not cause me any ill effects.

Today I received a sample of The Fay Farm’s CBD Warming Muscle Rub.  I will write a review of this soon.  I’ve used it once and was surprised at how much it helped with my pain.  I want to give it more time before posting my review.

For the past year I’ve been using cannibus to control the nausea and vomiting during a vertigo attack.  I use it when I first feel the vertigo start and it has helped greatly.  Before using this I was taken to the ER a number of times because the vomiting was so severe I would become dehydrated and traditional antiemitics do not work for me during this time.  I feel this also helps to slow or stop a vertigo attack before it gets bad.  (yes, my doctors know I use this, I’ve had 2 say if it was legal in this state they would prescribe it, that’s why I started using it.)  I have do not use enough to get “high”, if I did I’m afraid I would have a vertigo attack because of it, therefore it does not help me with pain.  I am hoping as I start taking the cannabidiol it will help with the nausea and reducing my vertigo atacks all the time so I don’t have to use cannibus at all.  Again, something I will update on in the future.