Ready for 2020?!

Image by Gerd Altmann from Pixabay

I’m baaaack! Whew, I didn’t mean to be gone so long. I actually did write a post during my absence, but, silly me, I forgot to hit “Publish” and it’s out of date now.

Let’s see what was going on when last I left you?

We were getting ready to move into our house. Check, that happened; there are still plenty of boxes and there is actually more to move from Stuart’s dad’s house, but we are in OUR house and it feels good, even if I’m extremely exhausted and flaring.

I had hopes that the nerve block injection I had in my neck was working, but it didn’t. I had a couple of good days, but I think that may have just been good days because it sure didn’t last. I saw the pain doctor again and I had an occipital nerve block on the right side on December 30th to hopefully help with my migraines. I actually do think this one is working. I have had migraines since the injection, but they did not start in that area. That’s great, because a LOT of my migraines do start in that area. It hasn’t been long, but so far I’m hopeful. I also had an x-ray of the thoracic region of my back and it showed no damage; I have to say I was surprised. I have so much pain in that area, and it feels like it comes from the bone. I’m happy I don’t have problems there, but I do wish I knew what the heck is wrong. It’s really hard when you can’t have an MRI. She also wants me to have a nerve conduction study to see what may be causing my arms to go to sleep since the nerve block in my neck didn’t help. I’m not looking forward to that test, it’s not very comfortable (to say the least), but hopefully it will provide some answers.

Right after my last post I had a severe gastritis attack accompanied by severe diarrhea (literally crapping my pants over and over. yes, I know, TMI). I had my yearly physical right after that and my doctor thinks I may also have diverticulitis. I’ve been referred to a gastroenterologist, but haven’t heard from them yet. The day of our move I woke to the all too familiar feeling of gnawing pain in my stomach, luckily it didn’t escalate to a severe gastritis attack, but it was a very uncomfortable day.

I can’t say much about the holidays because it is just a blur. I know they happened because of all the decorations in stores and specials on TV, but boy oh boy we sure didn’t have time to celebrate anything.

So now I am ready to say goodbye to 2019, and face 2020 with renewed hope and wonder. I plan to take each day as it comes, have more fun, and take things less seriously. I’m not going to make up a bunch of resolutions I probably won’t be able to keep, but I do want to face this year feeling a bit renewed. After all, I just moved into a new house, my life is drastically changing. I’m going to be changing places I normally do my shopping and even some doctors…because we now live on the other side of town. So much is changing, there is no need for me to make resolutions, things are just going to change naturally. However, I do plan to make some short term changes throughout the year. There are some things I want to try so I plan on doing some 30 day challenges for myself, perhaps some of them will last longer, I’m sure some won’t last the whole 30 days. For example, for 30 days I want to eat vegetarian, to meditate daily, to journal daily, to draw daily, to not eat out, to not buy anything new except food… Well that’s 6 months right there! I’m not going to be hard on myself if I can’t keep to these things, but I feel like if I put a short time frame on it then I can just try it out and see if it’s for me, who knows it may be something I just love and will keep doing forever, or it may be something I hate and quit in a week, no pressure.

I think that’s enough to get things updated and to get me writing again. It has been one crazy busy month! Not only have we been moving, during the holidays, I had 1-3 doctor’s appointments each week. It’s time to slow down and get this year started.

Happy New Year everyone! May this year be filled with love and happiness for you all.

A Midi-Me Update – Injections, Psych meds, Houses…Stress

Photo by Thomas Plets on Pexels.com

A little bit of a catch-up as to what’s going on in my little corner of the world, besides, if I don’t write it down, how will I ever remember?

I got the results from the x-rays of my neck, it basically says I have Degenerative cervical spondylosis (often referred to as degenerative arthritis) with narrowing of C5-C6, retrolisthesis (the posterior or backward slippage of a vertebra) of C5 on C6, and bilateral neural foraminal encroachment (spinal nerve root is compressed on both sides) at this same level more extensive on the left.

I went in on Monday and got my injection. They did the injection between C7 and T1, a little to the right, because my right arm is the one that bothers me the most. When the nurse took me back to the procedure room I told her how nervous I was because of my hearing loss and Stuart couldn’t be back there. Since losing my hearing it’s very hard to have procedures BEHIND me without Stuart there to help me. She reassured me over and over that they would take good care of me. I had her tell me everything they would be doing, and I felt a bit more at ease. The doctor came in, this is the first time I met him, I only saw his assistant before, he asked if I could hear him at all and I tole him Yes, but after I lie down and he is behind me it will be garbled and I will have a very hard time. He seemed to understand. Obviously he didn’t, because it was horrible. He talked with his assistant the entire time, it sounded like just chit-chat but I can’t be sure because I couldn’t understand anything that was being said. I had no idea when he spoke to me. I didn’t know when he was going to stick me, nothing. I was terrified he was telling me to be very still or to move or something and I was not able to understand. When it was over I didn’t even know. I was confused if it was time for me to get up. When I sat up the nurse was there and asked if I was alright and I said, “I do not feel taken care of” and I burst into tears. I explained what happened and she said how sorry she was and that it should not have happened that way. I got myself together and went back to my room to get my IV out and leave. The doctor came out and made sure to catch me before I left and apologized. He was very nice and told me that he talks because it calms him, he was very sorry and it will never happen again. We will make sure we have a better way to communicate. I left feeling much better, and I was proud of myself for speaking up. In the past I would have held it in and gotten out of there as fast as I could and simply not gone back. Now they were educated and I had a much better experience.

Unfortunately, the shot hasn’t worked. I’ve seen no evidence of any change. We will have to try something else. I go back the day before Thanksgiving for a follow up, we’ll discuss the next steps then.

Now for an update on the psych side of things. I still haven’t gotten approval from my insurance company for the ketamine. They came back saying I needed to try TMS (Transcranial Magnetic Stimulation) first, so my doctor’s office had to send back explaining that I can’t do that because of my cochlear implants. Of course, it takes the insurance company forever to come back with an answer. Geez. On the up side though, the new antidepressant she put me on, Fetzima, is doing some good. I’m not back to my normal self, but I’m not feeling like I’m in the deepest darkest depths of despair either. I saw my psychiatrist on Wednesday and we increased the dosage, I’m hoping it will bring me up a bit more. She told me to watch out for side effects, as it can cause headaches. I asked her, “How would I know?” I was being kind of serious, like, would they be different than this constant thing I have now? or what? But she said, “I guess you wouldn’t.” Well damn. Now how do I know if my migraine is actually getting better but this drug is causing me to have a headache?

We have been constantly looking for houses, trying our best to find just the right house for us before our lease is up. We can move into Stuart’s father’s house, but that means we’ll need to move twice. We thought about renovating the family home, but we don’t really want to live there forever, so we are still searching for a place to call our own. Crossing fingers and toes that a house we saw this week will turn out to be the one. We might just have a very magical Christmas.

Speaking of holidays, is there anything more stressful than trying to organize a holiday meal with people won’t tell you what they will and will not eat until you tell them what you are making and then they just say, “Oh I can’t eat that”, or “The kids won’t eat that”? Ugh! I used to really want to have a family holiday, but boy oh boy is it a pain in the butt. They can’t afford to do much, so we thought we’d do everything, but I couldn’t get anyone to tell me what they would eat. I swear you just can’t please some people. So they are bringing food too, we will have way too much food for 7 people, about half of it, I can’t eat. When we lived in NC we used to have an “orphans” Thanksgiving. We’d have a big meal with a bunch of people who had no where to go for the holiday. It was always so much fun. We’d often play games after dinner and talk for hours. I don’t know anyone like that here, of course, I don’t know many people here.

To make things much less stressful for Thanksgiving I ordered our meal from Wholefoods. I’m adding another vegetable, a desert, and some cookies. That’s all the cooking I’m going to do, and I love baking, so that’s not stressful. I also make my cookies in batches, I simply freeze the dough and cook it later. Also, if I can’t do it, it’s not a big deal, the meal is taken care of, and the other half of the family is bringing a pie, so everything is covered. I find, the trick to surviving the holidays when you are chronically ill is to have all your bases covered in case you can’t do the things you want to get done. Don’t over extend yourself. Rest often and don’t eat too much junk. Try to keep your normal schedule if you can. You might want to increase some of your supplements. I increase my vitamin C, D, and Zinc during the winter.

How do you survive the holidays? Any tips you want to share?