Today I’m happy to introduce a new friend, Kim, from her blog, I Tripped Over a Stone. She is an amazing writer; I am so pleased she decided to write a little post for us. Please jump over to her blog and check her out, you’ll be so glad you did.
Hello my name is Kim. Wendy asked me to scoot over here from my blog and do a guest post for her. I happily accepted. You see, I consider Wendy a friend. We are similar in many ways, besides having invisible illnesses, we have the same kind of humor. I have no doubt we will one day meet in person.
I have Fibromyalgia Syndrome, Wendy has Meniere’s Disease. These are classified as invisible illnesses and both are chronic conditions. Neither is really a great one to have. Would you want want vertigo, inner issues and migraines or would you pick constant pain, difficulty sleeping and cognitive difficulties? Choose. Yes, choose right now! Fibromyalgia Syndrome or Meniere’s Disease?
Now that you have picked your illness, how would you handle this new, life altering, invisible illness? Would YOUR life be over? The answer is yes. Your life, as you know it, will be over. You will have to say goodbye to the old you and hello to this new person who feels like crap most of the time and is a shell of who you worked so hard to become. You will probably lose your job, most of your friends, and some of your family members. Since your illness is invisible, you will be deemed unreliable even though its your health that’s unreliable, not you. You will be scoffed at for being on any form of assistance and called a liar because you do not look sick. Welcome to your new life.
Now you get to choose again! Are you going to be a Debbie Downer or a Little Miss Mary Sunshine? People usually pick one or the other. Debbie and her self-defeating behavior; why try when nothing will change, there is nothing left for me in this life, I am of no use. Now Little Miss Mary Sunshine knows everything and it is making a brand new life, finding the right doctors, support groups, and will forge ahead! These are the personas we sometimes show others. In reality, we are sick and tired of being sick and tired. We just want the pain, the vertigo, the migraine…to end. A cure would be great! Until then, we take our medication. Sometimes we will go to extremes and have surgical procedures, with no guarantee of a positive outcome. And we read everything; news of every new pill, treatment, therapy, hoping we will stumble upon our way out of this illness. So who is the persona you show to the outside world, Debbie or Mary?
Ok, you can be yourself again. I am am not very found of Debbie or Mary but in a pinch I will become one or the other. I’m never quite certain who I will pick, it depends on the circumstance. It was not fair of me to expect you to choose either. But life is not always fair!
In closing, Wendy and I will continue on our individual health journeys with a little help from each other and you! Being able to tell our stories and allow people to see us is quite terrifying at times. But somehow our paths have led us to this place and we are so very glad it did. We have been given a gift! A place to share our lives and the ability to meet such wonderful and endearing readers of our posts.
I thank you, Wendy. I enjoyed being your guest today.
~Kim
Visit me at I Tripped Over a Stone. itrippedoverastone.com
Hi! Feels funny to comment on my own blog so I won’t 🙂 Thanks for the kind introduction and the invite to be your guest blogger! Meant the world to me. Thank you sincerely, my friend! Kim
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Thank you so much for the post. I really love it!
Feel funny to see your writing on someone else’s blog?
I’m so glad you enjoyed doing it, we’ll have to do it again sometime.
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GREAT post. How right it is that the invisible disabilities are often the most difficult – since there is so very little awareness and understanding extended — in particular by those who lack compassion and empathy generally. They miss a lot when they don’t extend to others — but we do too!
I especially liked the point that we who are challenged often vacillate between Mary and Debbie behaviors, depending on circumstances. I firmly believe that reality is perfectly acceptable and to be expected, but unless we can – somehow – find a way to forge ahead under daunting circumstances, ALL is lost.
xx,
mgh
(Madelyn Griffith-Haynie – ADDandSoMuchMORE dot com)
ADD Coach Training Field founder; ADD Coaching co-founder
“It takes a village to educate a world!”
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Thank you for you thoughts on my blog! I am inspired to forge ahead! I firmly believe that is does take a village to educate the world as you have made a statement I will remember as I continue to blog. Wendy and I are part of your village, we must keep educating, we have these illnesses, they do not have us! ~Kim
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Nice distinction!
xx,
mgh
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An extremely good glimpse into the world of chronic invisible illnesses. I’m rarely Mary Sunshine — Wendy can tell you I’m more of the Debbie Downer type. I strive to be somewhere in the middle — the “new normal” as they say. Unfortunately, that can be a tough place to find.
Thank you to both you and Wendy for this.
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Keep striving Lorraine. It’s worth it when you can find the new normal and be okay with it. Not just okay, thrive.
We can all be Debbie downer. Trick is to not let her control you.
We are part of your tribe. You can count on us.
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