Today is Day 28 of #HAWMC (WEGO’s Health Activist Writers Monthly Challenge). The prompt today is:
5 Challenges & 5 Small Victories.
Make a list of the 5 most difficult parts of your health focus.
Make another top 5 list for the little, good things (small victories) that keep you going.
5 Challenges – 5 most difficult parts of my health focus:
- FEAR- My number one challenge is Fear. I’m afraid of the vertigo. Of course I’m afraid when I’m having it, but I’m constantly afraid I will have it even when I’m not. I’m afraid of the pain, the migraine pain, the arthritis pain, all of the pain. I’m afraid the pain will get worse and I won’t have any way to manage it. I’m working through some stuff in my past and I’m afraid of what I’ll find out. I’m afraid of more than I like to admit, but I’m working hard to be less afraid.
- Finding Doctors – I’ve had a difficult time finding doctors that treat Meniere’s Disease. Even if they say they do, they often have little knowledge of the disease. It’s also difficult to find a doctor who knows a lot about migraines. It has been difficult to find good doctors to treat me. In each field I’ve felt I’ve found a good doctor, only to be hit with the “I can’t do anything else” line soon. It is a definite challenge to find a good doctor.
- Freedom taken away – Isolation, is a big challenge. Since I can’t drive, I have to depend on my husband to get me out of the house, this is a difficult thing sometimes. He works hard and when he is at home sometimes he has things to do here, or he just wants to relax, he doesn’t need to be taking me out all the time. Plus I have to get over my fear of having vertigo in public before I can go out at all. My freedom isn’t just taken away because I can’t go out, it’s also taken away at home. Because of my illness doing certain things are not only difficult, they can be dangerous. I can no longer cook because it’s dangerous. I can’t take a bath or shower by myself, because it’s too dangerous. It’s very hard for me to do any housework, sometimes because of the danger, sometimes because of the fatigue.
- Friends – It is a challenge to keep friends, and to make new friends. Many of the friends I had before I became ill are not in my life as much now. (various reasons, but let’s face it, I’m a different person.) Making new friends is a huge challenge. (I wrote a post about this, Making Friends?.
- Food – Food has been a challenge for a long time. I have had GI (Gastrointestinal) issues for as long as I can remember. Then I found out that I have Fructose Malabsorption, IBS, and a wheat allergy. I have a specific diet I must follow so I won’t get sick. This makes it hard for me to eat out, or to travel. It’s hard to explain to people, “oh, I’m sorry I can’t eat that lovely meal you prepared” It used to be hard to explain why I can’t eat wheat, now it’s really hard explaining why I can’t eat onions, apples, and all kinds of things.
5 small victories – list of 5 little, good things that keep you going.
- Successful marriage – This isn’t a small thing, this is a HUGE thing, but it’s what helps keep me going. My husband and I both agree when we think about it we don’t feel that we work hard on our marriage, it’s just something that comes natural, but that isn’t exactly true. We do work hard, it’s just something we want to do, so it doesn’t seem like work. When I first started losing my independence it was very hard on our relationship. I shut him out and he didn’t know how to talk to me. We decided to see a therapist. It was there that we learned to communicate again, and we both have a better understanding of how to deal with my illnesses. If I could give one bit of advice to any couple going through one partner becoming ill, it would be to get a therapist. It might just make your marriage better. I know mine is.
- Days I can deal with vertigo alone – this is a big victory for me. When I start to have vertigo I panic because I never know how bad it will be. See number 1 under challenges, and you will know, I’m afraid! So going through a vertigo attack without help is a huge victory for me. I’ve done it a few times, where I’ll have vertigo when hubby is at work and I don’t callv him home. This doesn’t happen often, so this is a small victory, but it’s a big victory really, every time it happens.
- Making new friends – I’ve made many new friends on line. I have a hard time meeting new people in person, but I’ve found that I can meet some wonderful people on line. I’ve made some wonderful friends through my blog. I have one friend that I met through my blog about 7 years ago now, our friendship has transcended the blogosphere. We email, text, and send packages to each other. We have called each other, but I can’t really talk on the phone. One day I hope to meet her. I think this is a pretty big victory, to go from losing friends to gaining such a deep friendship with someone I’ve never met in person.
- Getting out of the house – There are days I can fight through the fear and get out of the house with minimal distress. When I’m having a good day we can go out and do normal things. Those times are small victories, they get me through until the next time. They remind me that I can do it.
- Diet – Eating my restrictive diet has made it so I can eat with minimal to no GI distress. It may be challenging to eat this diet, but I think it’s a small victory, actually a big victory, to be able to eat without GI distress.
I wrote a similar post to this one here.
I’m participating in WEGO’s #HAWMC, if you’d like to read more posts from today please search for #HAWMC and check out WEGO’s Facebook page. Don’t forget to Like Picnic With Ant’s Facebook Page too. 🙂
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