I know I’m having a hard time with cognitive issues lately. I can’t remember a lot, and there are times I’m just confused. I should have taken precautions because of this…but I didn’t even think about it.
I goofed on my medication. Don’t say it…I do have a medicine box….and Stuart fills it for me lately because I’m so wonky in the head, however, I always take my Diamox (the medicine that keeps my CSF lower) at a different time than the rest of my meds. I take one as soon as I wake up, even if I’m going back to sleep, I need to keep the night and morning dose less than 10 hours apart. I also take my night dose just as I’m going to go to sleep…..again to keep not too many hours between them. If I don’t I get a blinding headache when I wake up. I also take one in the afternoon….I don’t take any other med in the afternoon, so I don’t have a 3 slot box….just AM and PM. (I hope that makes sense)
OH, I should say….I take one in the AM, one in the afternoon, and 2 at night. (the 2 at night helps stop the headache thing)
Well yesterday, and I’m not sure I didn’t mess up the night before too….I just don’t know, I tell you I’m confused…and it’s worse now. But, yesterday morning I took 2 instead of 1…..my CSF (cerebrospinal fluid) dropped, too low. So I stayed in bed lying flat trying to keep my pressure as even as I could. Not a good day. I did not take my afternoon dose, and I thought that would be it. I went one over, so taking one less should make it right. Ummmm, nope. I took 2 at bed time, and I got so sick! I had a headache at an 8 on a scale of 1 – 10. Luckily, my migraine meds and ice on my head lessened the headache…but I was swimmy headed (as my mother used to say), and very nauseous. And so confused. I will lie here and think, “why am I here?, what am I supposed to be doing?, why does my head hurt? why is the roaring in my ears so LOUD?…” I start to get to get all teary because I’m just so off…..it’s very hard to explain. I feel lost and very anxious about it.
This morning I woke up and felt great! For the first time in months. Stuart was still asleep and I actually pondered going downstairs and making him breakfast, but didn’t know when he’d wake and wanted him to sleep as long as he could….he’s been feeling a bit run down…I wonder why? Then I got up! Oh no, I would not be trying to navigate the stairs today, I wouldn’t be doing much, but lying flat….again. Damn. I was so happy when I woke up, but that bubble busted pretty fast. I was so ticked off, then Stuart pointed out….how many days have you woken up feeling good lately? None….for a LONG time. So even that is a victory. We’ll get this medication mix up straightened out. (he will be giving me that medication from now on, or until I stop feeling so wonky in the head anyway.)
FYI – Speaking of Stuart…..he has had one or two phone interviews and has more lined up….and possibly an in person interview soon. Most local. I don’t think we will have to move…but if we do, we’ll handle it. As long as we’re together.