Saw Dr. Kaylie on Tuesday. I have an ear infection. Again. Who knows why. He thinks the tube is beginning to irritate my ear because it’s trying to come out…and blah, blah, blah…I didn’t really listen to that part. Partially because I couldn’t hear him, and partially because he started the sentence with, “I don’t know” When a doctor says I don’t know…well, I have a hard enough time trying to hear the things they really do know about. I let Stuart listen to the rest. : ) However, he doesn’t think this infection has anything to do with my on going symptoms.
I started feeling like I was going to have a full blown, down on the floor, throwing up Meniere’s attack as we got to the clinic. I’d already taken some meds before we left the house because I was feeling it a little bit. So I took some more. I did not want to fall out at Duke’s Clinics. It’s hard enough in the privacy of your own home, but I just can’t imagine the horror if I fell down in the hall there writhing on the floor throwing up. Ugh…just the thought. I know, I was in a medical facility, and they would try to help as much as possible, but let’s face it, I would have been mortified. So, I took more meds, and Stuart wheeled me in to see Dr. Kaylie. When he saw me he looked so sad. He’s such a sweet, compassionate, and unbelievably smart doctor, I just wanted to be able to get up and say, “don’t worry I’m fine, you fixed me all up.” Of course, I couldn’t. But I do believe that he and Dr. Gray will do everything they can to make it better.
He was very sympathetic, but I really need to see Dr. Gray. He is treating my ear infection, but he can’t really do anything about the pressure problems. I have to get it tested again!
Dr. Gray also called on Tuesday. Her scheduler called the next day and I have an appointment on October 17th, unless she has a cancellation and they can get me in there sooner. We really can’t move forward until we know if my pressure is high, like they suspect.
My symptoms aren’t classic for having high pressure, but I do have some. However, I also have some of the symptoms for having low pressure. It’s almost as if my pressure keeps randomly going up and down…but that can’t be happening all by it’s self…can it? Guess I’ll find out.
In the mean time, I’m most comfortable in bed, in a reclining position. I’ll try to go down stairs to just move around and get a different bit of scenery, but I don’t last long. When the tinnitus gets too loud, I can’t stand any other noise. I’m not as comfortable on the couch, and I’m not really walking all that great on my own. I can usually get from the bed to the bathroom, but that’s only about 4 feet, then I can hold on to the walls/sink… (plus I do have a walker right beside my bed to help if I need it.) If I’m downstairs I have to use my walker or Stuart to get to the bathroom. (Not all the time, but most of the time.)
It is driving me crazy that I can’t cook. I love to cook, and with my food intolerances, it’s hard to cook for me, and even harder to get take-out. So we’ve been eating a lot of the same things. Easy things that my husband can cook. I’m very grateful, but I miss my kitchen!
Oh, Stuart has discovered the slow cooker. He made a delicious roast this week. I was so proud of him. he even put in a bunch of potatoes and shallots that came from our garden! (we didn’t get much from the garden, but the things that grow underground did great.) Growing organic vegetables is hard! We learned a lot of what not to do…hopefully, we’ll do better next year. Unfortunately, we’ll be missing the fall planting season since I’m stuck. Being home bound sucks!
I am keeping up my spirits by drawing, and reading.
I don’t think I’ve mentioned it, but Stuart’s father is getting married! November 5th is the big day. I’m going to have a mother-in-law…wow! (Stuart’s mother died 3 months before we were married.) I really, really, really want to go. They live in Tucson, AZ. That’s a pretty long flight from RDU (Raleigh/Durham International Airport), and there’s always a lay over somewhere. I’m very, very lucky that I have a couple of friends who have graciously offered to stay with me if I can’t go, so Stuart will still be able to go and be his father’s best man. As much as I want to spend time with these friends, I really hope I can go. Not only do I want to meet my new family members (she has 3 children and 4 grand children!). I want to see my dear friends who live there, and my niece. (who will have a baby brother in January).
So everyone send good healing karma, and cross your fingers I can get in for an appointment with Dr. Gray earlier than expected! I really need her to fix me up quick, so I can make it to the wedding! (plus, Stuart and I really need a vacation!)
6 thoughts on “The Ball’s Rolling now”
Aww Wendy, I am so sad to heat that you are down, but I can tell that you are trying your best to keep your spiris up!! I had an attack Wed/Thursday, which was frustrating, but also expected after a pretty good run of feeling okay (two weeks, wow!!).
Sending healthy vibes to you… and hoping that you get to make it to the wedding!! Do you have trouble flying?? I don’t and feel so lucky for that, since my family live a 4 hour flight away!
Keep up the positive thoughts!!
I’ve flown a few times over the years, and have only felt icky once, and meds helped with that. But lately, I’m having trouble with everything, so I’m afraid flying might do me in. The thought of not being able to lie down, just terrifies me, and throwing up in front of people…horrifying. I can’t imagine how the flight attendants would handle it. But if I’m a bit better, I’m going to give it a shot. (I may dope myself up before getting on the plane, but I’m going to try to make it!) Also hoping we can upgrade to first class so I can lie down.
I’m so sorry you’ve been dealing with attacks…no fun at all! Only two weeks free from an attack? That’s not very long.
Are you having the violent attacks every couple of weeks, or are you having the spinny attacks, without the throwing up all night? (I can handle those much better…but the throw up attacks, that is just horrible.)
thinking of you too.
Slow cookers, FTW!
The rolling ball art is hypnotic.
I’m so glad you like the ball. It took me a long time to figure out how to accomplish what I wanted to do with that. It didn’t end up how it started…but I like the results. (that’s happening a lot with my art lately!)
hope to be able to see you soon.
as soon as I’m up to it, I’ll come get you, or have Stuart come get you! Hopefully, after the 17th, I’ll be much better. (she’s thinking if she removes some of the CSF I’ll feel better, that they got it too high this time…and hopefully I won’t have “blown out” before I get there.
what a Pain in the ARSE!
miss you my friend.
Good healing karma has been sent. I hope you feel well enough to go to the wedding. It would be great to get away and have a little vacation.
I totally agree…getting away would be a dream.
However, it would be hard on Stuart if I’m still feeling bad.
Last night was a bad one.
I’ll post about things soon. Just hate to bitch so much.
Thank you for the healing karma, I’m sure it helps!!!