Well I guess the title says it all.   I had a vertigo attack yesterday.

Dr. Gray isn’t sure whether my CSF (Cerebral Spinal Fluid) pressure is to high now, or if the blood patches didn’t take and it’s too low.

When the world started to spin yesterday I took a Valium and a Phenergan immediately.  Then I decided I’d try one of the pills that she gave me to reduce the CFS pressure.  The spinning lasted for a little while, but it never got really bad (by that I mean I didn’t throw up).  Every time I would close my eyes the world would spin much faster and I would start to feel sick.  At one point I got all hot, the world was spinning…I just knew I was going to see my lunch at any moment.  But I really tried to stay calm.  I stared at the corner of the ceiling and willed it to be still.  I just concentrated on staying calm and not throwing up.

Usually, I get very upset when all this starts and start to freak out.  I did get very upset at first when right after I took the pill to lower my CSF pressure my husband looked at me and said, “I hope your pressure isn’t already to low because that could really make things a lot worse if it is.”  I was so scared, I just burst into tears.  He felt so bad.

During this attack I kept repeating the words “calm”, “peace”, and “relax”.  I felt much more at ease.  Even if things had gotten all out of control and I’d been throwing up like crazy, I think trying to keep my head about me and staying calm helped me feel better about the situation.

Yes, I’m still scared.  I’m tired of being poked and prodded.

I went to see the Digestive Health doctors last week, and I have to go through a whole other battery of tests.  The first one was supposed to happen today, but I had to cancel it.  But I am so overwhelmed by everything that is going on with me and the Meniere’s I just couldn’t handle anything else right now.

That dang ticking sound is back.  It is driving me crazy.  I know the biggest reason it bothers me is that it sounds like it is coming from outside of my head.  All the other noises I can tell are just coming from my ears.  This noise tings, and it has no rhythm, it’s just arbitrary.  I feel like it’s a frequency I might be able to hear, and that make s it even worse.  I keep thinking maybe Stuart can’t hear it because of all the other noises he can hear, but then I put in ear plugs to keep it out and it’s still there.  I had such a hard time sleeping last night, thanks to the mysterious tinging sound.  (and we all know how important sleep is to us.)

Thanks again for all the support and for just listening to me rant.  I really appreciate all the comments that you leave me.  It makes me happy to know that there are people out there who understand, and people who are pulling for me.  I’m very humbled and grateful for all of you.


3 thoughts on “Vertigo

  1. deb

    Oh Wendy, I am so sorry that this is happening too you. As I read your story of what happened yesterday I could feel exactly how you felt. The spinning, the heat, the getting ready to toss your cookies…..ugh. I would have found myself camped on the bathroom floor waiting for the inevitable. So proud of you for holding it together.Praying for peace is what I do too and I usually don’t throw up when I do that!
    So you have hit another point in your journey. I wonder what this next step will reveal to you. If you get rid of the “ping” let me know….I get that often too. It sounds like a single tone of a weird bell when I swallow. Pretty hard to ignore!
    If it is the pressure thing it can be resolved..fix the patch or lower the pressure. I know it sounds easy for me, I am not the one on the table. But we are rooting for you because it could be any one of us at anytime. We are living vicariously through your experiences as we hope and search for our own cure. I hope that our experiences are helpful to you as well. How wonderful it is to be able to share the good, the bad and the ugly with people who really know and understand!
    Hang in there friend!


  2. Courtney

    Oh friend, I’m so sorry. I hope that you are feeling better today. Very proud of you for not panicking. I always panic during attacks. Please do continue to hang in there, and continue to try to find the solution. It could be a simple adjustment one way or the other. I hope Dr. Gray can find the answer very soon for you. Hopefully this was the last. We’re all with you and supporting you 110%


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