How I Grocery Shop With Chronic Illness

 

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image from pixabay.com

 

For a very long time Stuart has been the shopper in our family.  Not that he likes it, but it was necessary.  We also had someone cook for us for over a year, when we had this service she did the shopping for what she made and we just had to pick up other necessities, that really helped, but over the past few months I’ve started cooking again.  Even with my increased symptoms I’ve been able to keep this up;  I say “I”, but actually, we cook together most nights, it’s just more fun that way.  Grocery shopping was once again totally Stuart’s responsibility.

I have been able to go to the grocery store with Stuart, most of the time, but it just takes so much time and he has a lot of responsibilities outside of that.  I was feeling pretty guilty that I couldn’t go on my own.  I really wanted to take some of that responsibility off of him.  So I looked into ordering our groceries.

This started when we I took him on our weekend getaway.  I found out I could order groceries locally and have them delivered to our house.  It was great!  For the first delivery the fee was waived, however, I was expected to pay a tip.  After that first delivery it was just too expensive to pay the fee and a tip every time I ordered groceries, so I started searching for other options.  Different stores offer different options so I did my research.  The grocery store we use most often offers both delivery and pick up.  You can order your groceries online and either have them delivered or pick them up at the store.  Picking them up is cheaper, and it is really not a big deal for us.  Stuart just drops by and picks them up on his way home.  He doesn’t even have to get out of the car.  It cost about $5 each time, or $99 a year.  After we tried it for a little while and saw that it was a good fit for us, we went ahead and paid for the year.  We get groceries every week so that is a pretty good deal.  And we are not expected to tip.

Each week we plan out our menu and I order it all on line.  You can give your shopper notes to make sure you get just what you want.  For example, I can ask for green bananas if I want, and if I want part of my bunch of bananas to be green and part to be ripe, I can have that too.  Most of the time I have been very pleased with the produce I’ve received.  There have been a couple of times that I wasn’t thrilled, but I’m not sure if it was the shoppers fault or if that was all there was to choose from that day.  I make sure and give more detailed notes now, I let them know if the produce isn’t at it’s peak, I’d rather pass that day, or they are authorized to get a different variety.  (like if I order a regular cucumber, they can substitute a hot house one…something like that)

This has worked out so well.  We save money because we aren’t picking up things we don’t need.  I have the sales right there in front of me, so it’s easy to see when things we normally use go on sale and I can stock up on them.

It does have a few hurdles.  Not everything on their site has the ingredients listed and that’s really important to me.  So sometimes I have to Google it.  It can be harder to compare items to make sure I’m getting the best bang for the buck. Sometimes there are things I know they carry, but they don’t come up when I search.  If I really have a hard time with that though, I message my shopper and just have them pick it up for me.

Now if it were just easier to meal plan.

 

Have you tried ordering your groceries?  What was your experience?

Do you have any tips for meal planning when there are sooo many food restrictions we have to consider?

Good Eating everyone!

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When it Rains…..

I’ve had so much going on, not just getting ready for the surgery but other things happening too.  As they say, “When it rains”….learn to dance.  (ok, I’m paraphrasing)

quote by Vivian Green. image from - www.background-kid.com

quote by Vivian Green.
image source – http://www.background-kid.com

As I mentioned in my last post, a few weeks ago I started having positional vertigo.  If I moved my head in certain positions I had violent vertigo….left for a very limited life.  I’ve had something like this before but it was associated with my migraines.  No migraines with it this time.  After a few days I tried to get in to the doctor here, but no appointments for a few days (13 days after it started), so after 12 days, it finally stopped, the day before my appointment.  I did see the doctor and I was diagnosed have Benign Paroxysmal Positional Vertigo (BPPV).  He said this will most likely pop up now and then forever.  It is caused by crystals in your ear coming loose and going where they aren’t supposed to, the vertigo stops when they go back.  (I’m just touching on the highlights of what he told me here.)  There is a maneuver, called the Epley maneuver, that the doctor can do to get the crystals to go back, sometimes the crystals go back on their own…like mine did.  BPPV can cause one to have feelings of vertigo, dizziness, nausea, lightheaded, and unsteadiness.  It will most often dislodge again, over and over.  I’m not supposed to look up, or bend over very much, and be careful when I’m lying in bed how fast I turn over…..

Some sites do say that this can happen only once.  I know someone who had this happen once and never had it happen again.  Maybe I’ll be one of those.  (one can hope.)  I have having very strong feelings of lightheadedness, and unsteadiness.  When I turn my head too fast I am wayyyy off balance!  Johns Hopkins has a very good write up about BPPV, what it is, how it is treated, and the prognosis.  I won’t try to summarize it here when you can just read it there, it’s a pretty short article.

Yes….I have a 3rd thing that causes vertigo.  I’m such a dizzy broad!

Last week I had a real scare, it happened so fast I was just in shock the whole time.  I suddenly had pain, swelling, and a big knot (sorry it was just too big for me to call it a lump) in my breast.  I wasn’t concerned at first because I know most often breast cancer doesn’t cause pain unless it is very advanced and symptoms don’t come up so fast….I mean within hours.  But there is a breast cancer that can do this, it’s called Inflammatory Breast Cancer.  That stuff is scary!!  My doctor got me in for an emergency mammogram and ultrasound, and an evaluation from a Breast Specialist, within days.  They took a lot of pictures an it hurt like the dickens because my breast was is sore, even the ultrasound was very painful.  But I’m happy to say, I’m fine.  Even though I’m post menopausal, for some reason my hormones decided to make my milk ducts go crazy.  Now everything is going down…slowly, and the pain is going away.  Thank goodness.  But it was very scary there for a while.  I didn’t have all the symptoms, but I could have been in the very early stages, and they normally catch it at Stage III or IV.  It is hard to diagnose and is very aggressive, the normal life span is 5 years!  Yes, I’m preaching a little bit about Inflammatory Breast Cancer, I feel more people should know about it.  Here are a few links that talk about it, take the time and look over one of them.  Inflammatory Breast Cancer Foundation, National Breast Cancer Institute, and the American Cancer Society are all good site to learn more about Inflammatory Breast Cancer, they are all written in a different manner, so check them out and read the one that speaks to you.
I was beside myself for those few days, only my meditation got me through, but I still had a vertigo attack the day before my mammogram.  Even now my head is spinning (not literally this time) that I had no idea about this kind of breast cancer, and how fast things like this can happen.  I really thought that all of my chronic illnesses had made me realize how precious life is, and that I should never take anything for granted, but when I thought about possibly having this, I thought….. I’m going to stop putting off things!  I decided right then, I’m going to always live as if I only have 5 years to live.   Stop putting everything off because I don’t think I deserve it because I don’t contribute, because I’m sick all the time.  If there is something I really want to I’m going to try and do it if it’s at all, yep, I’m going for it!  I don’t want to regret that I didn’t do______________.
I really never thought I would feel that way.  I realized recently how many things I don’t do because I’m afraid of how I will feel the next day.  Because I don’t have enough “spoons”.  You know what?  I’m going to borrow those spoons from tomorrow, and of tomorrow comes and I can’t get out of bed, so be it.  There are a lot of times I can’t get out of bed even though I did do what I wanted.
I thought I lived my life to the fullest and didn’t worry if my life came to an end tomorrow, but when this scare came up, I thought…”I won’t be able to do ____________, or _____________….why didn’t I do __________….Stuart and I never got to ___________.”    That has to change.   Sure finances stop a lot, but we can’t save for a tomorrow that may never come.   Some things we need to do now, instead of saving for the bigger things later.  We need more joy in our lives today.  We need to dance in the rain more often.
On a different note…..
We went to the class about for people having knee or hip replacements at the hospital this week, right before my Pre-Op appointment (yes, I’m healthy enough go through surgery).  Everyone in my class was having a hip replacement.  The person teaching the class started by saying that most everyone there was probably there because they had arthritis in their hip I shook my head, no.  She looked at me, sitting in a wheelchair and said, “Do you have Avascular Necrosis?”  I shook my head, yes.  She said, “I’m so sorry, that is so painful.”  Every eye in the room turned to me.   I have to say, I was wondering why everyone there was able to walk in with no cane or anything.  Only one person had a slight limp.  I had to remember that I can’t judge their situation, I have no idea what is going on with them.  I was just surprised.  When they told me about this class I thought, “Really, they expect people who are having a hip replacement to sit through an hour long class?”  It seemed to be no problem for most people.
I kept wondering why they didn’t give out the hip motility items, before surgery, I know I need all of the help I can get now, and assumed everyone did.  I know now, not everyone needs so much help before surgery.   (The hip motillity items I’m refering to are the devices we get after surgery.  A walker, cane, 3-in-1 toilet, shower seat…..ect)
I do have a walker, 2 actually, one that is very sturdy and will help me when I’m starting to walk again after surgery (and helps me a lot now); another that helps me more with my balance issues, it has a nice seat and everything.  We put in a bar in the bathroom.  It has helped me a lot so far, and will continue to help me even after the surgery with my balance issues.  I’m really looking forward to getting everything else.  Our insurance covers motility devices, Stuart is going to call on Monday to see if they will cover some of these things if we buy them instead of getting them from the hospital.  The person teaching the class sounded as if they will, and it will cost less.  Also, some things they will give me at the hospital isn’t going to work as well as some things I could get on my own.  Crossing fingers here….or we may just be getting some things on our own, without insurance help.
My surgery will last at most an hour….probably less.  Then I go to recovery….they have a fancy name for it, I don’t remember it. I will have a nurse assigned just to me. I thought that was pretty amazing.  After a few hours there, I will go up to my room.  I should walk a bit that day.  It really depends on how the anesthesia affects me.  I won’t be having traditional anesthesia, I will be having a spinal block, much like an epidural a woman has when she has a baby.  I will also have an anesthesia much like what you get when you have a colonoscopy, so I won’t under general anesthesia.  Therefore, there are a lot less risks.
They will spend a lot of time with me in the hospital to make sure I know how to take care of myself when I get home.  Stuart will also be there to make sure he knows things too.  He has to be with me at home all the time the first few days.  I will have a Physical and/or Occupational Therapist come to my home 2-3 days a week.  So I can’t be slack with my therapy!  haha   No worries with that, I really want to get to moving as quickly as I can!
Surgery is 9 days away.  In the past couple of weeks I’ve had vertigo so much!!!  I hope I’m getting it out of my system.  I still haven’t figured out how I’m going to have an attack and not forget all about the rules when it is going on.  But I will make sure I know how to do these things before I leave the hospital.  I have special needs and I will make sure they are addressed.  That’s what it means to be are an advocate for yourself.
Don’t want to count my chickens before they hatch and all of that, but…..
Soon I should be able to dance in the rain with much less pain!