I have Chronic Migraines. I’ve been told this before, it was said once again yesterday. I’ve met a number of Neurologist who thought they could make it better. I still have Chronic Migraines.
I’ve been to 2 Neurologists who are Headache Specialist. There aren’t many of these doctors out there, I’m lucky that I have been able to see 2 of them.
The first specialist I was seeing was a Duke, I moved to Charlotte and started seeing a specialist here. I never thought we’d get to the point where we are now.
I’ve tried so many medications. I’ve tried Botox, and well just so many things. There are some medications I can’t try because of reactions I’ve had to other medications. My doctor is at the end of things to try.
I was taken off Topamax when I had the seizures because they thought that it may have caused them, now that we know it wasn’t the medication I can go back on it. My migraines did get worse when I was off of it, but my headaches were a long way from being optimal when I was taking it.
Over the last 3 months I’ve had a migraine ever day except 8. This does not include the headache I constantly have. When I first started seeing the specialist here she thought we could get the daily headaches under control and then the migraines would get better, well neither of those things happened.
Now I’m going back on Topamax to at least get me back to where I was. Having migraines about 15 days a months instead of about 30.
I saw my specialist yesterday and she said she is looking out for studies for me to participate in. There is nothing else she can think of.
I’ve decided to go to a Functional Medicine group to see if they can help me. Unfortunately, they are not covered under my insurance so this can get quite costly. I’m not sure how much I will be able to afford.
(Functional medicine is personalized medicine that deals with primary prevention and underlying causes instead of symptoms for chronic illness and disease.)
This is Invisible Illness Week. I’m not sure I’ll get it together enough to really post much about it, but Migraines are an invisible illness. I look perfectly fine yet I’m struggling every day. I have Persistent Daily Headaches and Migraine headaches. Every day my head hurts.
Remember, just because someone looks perfectly fine doesn’t mean they aren’t suffering silently. We may look great and still be sick.