A Midi-Me Update – Injections, Psych meds, Houses…Stress

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A little bit of a catch-up as to what’s going on in my little corner of the world, besides, if I don’t write it down, how will I ever remember?

I got the results from the x-rays of my neck, it basically says I have Degenerative cervical spondylosis (often referred to as degenerative arthritis) with narrowing of C5-C6, retrolisthesis (the posterior or backward slippage of a vertebra) of C5 on C6, and bilateral neural foraminal encroachment (spinal nerve root is compressed on both sides) at this same level more extensive on the left.

I went in on Monday and got my injection. They did the injection between C7 and T1, a little to the right, because my right arm is the one that bothers me the most. When the nurse took me back to the procedure room I told her how nervous I was because of my hearing loss and Stuart couldn’t be back there. Since losing my hearing it’s very hard to have procedures BEHIND me without Stuart there to help me. She reassured me over and over that they would take good care of me. I had her tell me everything they would be doing, and I felt a bit more at ease. The doctor came in, this is the first time I met him, I only saw his assistant before, he asked if I could hear him at all and I tole him Yes, but after I lie down and he is behind me it will be garbled and I will have a very hard time. He seemed to understand. Obviously he didn’t, because it was horrible. He talked with his assistant the entire time, it sounded like just chit-chat but I can’t be sure because I couldn’t understand anything that was being said. I had no idea when he spoke to me. I didn’t know when he was going to stick me, nothing. I was terrified he was telling me to be very still or to move or something and I was not able to understand. When it was over I didn’t even know. I was confused if it was time for me to get up. When I sat up the nurse was there and asked if I was alright and I said, “I do not feel taken care of” and I burst into tears. I explained what happened and she said how sorry she was and that it should not have happened that way. I got myself together and went back to my room to get my IV out and leave. The doctor came out and made sure to catch me before I left and apologized. He was very nice and told me that he talks because it calms him, he was very sorry and it will never happen again. We will make sure we have a better way to communicate. I left feeling much better, and I was proud of myself for speaking up. In the past I would have held it in and gotten out of there as fast as I could and simply not gone back. Now they were educated and I had a much better experience.

Unfortunately, the shot hasn’t worked. I’ve seen no evidence of any change. We will have to try something else. I go back the day before Thanksgiving for a follow up, we’ll discuss the next steps then.

Now for an update on the psych side of things. I still haven’t gotten approval from my insurance company for the ketamine. They came back saying I needed to try TMS (Transcranial Magnetic Stimulation) first, so my doctor’s office had to send back explaining that I can’t do that because of my cochlear implants. Of course, it takes the insurance company forever to come back with an answer. Geez. On the up side though, the new antidepressant she put me on, Fetzima, is doing some good. I’m not back to my normal self, but I’m not feeling like I’m in the deepest darkest depths of despair either. I saw my psychiatrist on Wednesday and we increased the dosage, I’m hoping it will bring me up a bit more. She told me to watch out for side effects, as it can cause headaches. I asked her, “How would I know?” I was being kind of serious, like, would they be different than this constant thing I have now? or what? But she said, “I guess you wouldn’t.” Well damn. Now how do I know if my migraine is actually getting better but this drug is causing me to have a headache?

We have been constantly looking for houses, trying our best to find just the right house for us before our lease is up. We can move into Stuart’s father’s house, but that means we’ll need to move twice. We thought about renovating the family home, but we don’t really want to live there forever, so we are still searching for a place to call our own. Crossing fingers and toes that a house we saw this week will turn out to be the one. We might just have a very magical Christmas.

Speaking of holidays, is there anything more stressful than trying to organize a holiday meal with people won’t tell you what they will and will not eat until you tell them what you are making and then they just say, “Oh I can’t eat that”, or “The kids won’t eat that”? Ugh! I used to really want to have a family holiday, but boy oh boy is it a pain in the butt. They can’t afford to do much, so we thought we’d do everything, but I couldn’t get anyone to tell me what they would eat. I swear you just can’t please some people. So they are bringing food too, we will have way too much food for 7 people, about half of it, I can’t eat. When we lived in NC we used to have an “orphans” Thanksgiving. We’d have a big meal with a bunch of people who had no where to go for the holiday. It was always so much fun. We’d often play games after dinner and talk for hours. I don’t know anyone like that here, of course, I don’t know many people here.

To make things much less stressful for Thanksgiving I ordered our meal from Wholefoods. I’m adding another vegetable, a desert, and some cookies. That’s all the cooking I’m going to do, and I love baking, so that’s not stressful. I also make my cookies in batches, I simply freeze the dough and cook it later. Also, if I can’t do it, it’s not a big deal, the meal is taken care of, and the other half of the family is bringing a pie, so everything is covered. I find, the trick to surviving the holidays when you are chronically ill is to have all your bases covered in case you can’t do the things you want to get done. Don’t over extend yourself. Rest often and don’t eat too much junk. Try to keep your normal schedule if you can. You might want to increase some of your supplements. I increase my vitamin C, D, and Zinc during the winter.

How do you survive the holidays? Any tips you want to share?

The Boot and The Back

Friday was a normal day.  I didn’t have a lot to do (bored).  I’d been sitting in my chair reading when I got up to let our dog out.  I got about a two feet and I ran into this:20170718_112901

again…..and did this

broken foot

happened…..again.

About 4, or was it 5, years ago, I tripped on my walker and broke my foot.  At least that time I was using it.  On Friday it was just sitting beside me.  I haven’t needed it lately, but I keep it close, just in case.  A little too close to my foot as it turns out.

It hurt, like it does when you stub your toe, I didn’t think it was broken.  It just didn’t hurt enough.   I had this discussion with another chronically ill friend and she said the same thing about when she broke her foot.  It really speaks volumes as to how differently we feel pain.

Stuart talked me in to going to Urgent Care to get it checked out since I’d broken it before,  and was told it would be easier to break again, I decided it’d probably be a good idea.  (I hate to say it, but knowing we have met our out of pocket maximum for the year, made it an easier decision.)  I hobbled in Urgent Care, got checked in and was seen right away.  I had an x-ray and the attending physician said my x-ray showed irregularities.  She couldn’t tell if what she was seeing was all from the last break or if it was a new break.   She thought it was broken, but a radiologist needed to read it to be certain.  I was sent home with The Boot, and the radiologist would call on Monday.  They did, and it is broken.

This time it’s not as bad as it was the first time.  I didn’t twist my ankle or anything like that.  I’ll be in the boot for 4 weeks instead of 12.   It’s hot and heavy, but it is taking good care of my broken foot, for that I love my boot.

On the other end, I started physical therapy (PT) for my back last week.  What’s wrong with my back you ask?  I’m not exactly sure.  I did fall, so I might have wrenched it then. (that was over a month ago).  I had severe akathisia (the need to keep moving) for over a month.  This caused me to constantly tense my muscles.   It’s possible, my back just never calmed down.   I also have arthritis in my neck, this is causing a lot of pain recently.  PT will hopefully help that as well.

So far, I feel like the PT has been aggravating my arthritis.  I discussed this with my physical therapist yesterday and he did a few things differently.  Hopefully, these changes will improve the pain and still help me get stronger.  If not, I know I can talk with him about it and we will work to make it better, to make me better.   I’m so impressed by this office.  Appointments are supposed to an hour long.  As most of us know, that normally means you are actually seen about 45 minutes, sometimes less.   My normal amount of time at this office is 1 hour 15 mins.  Yesterday I was there for an hour and a half.  I hope I get the results I’m looking for, it won’t be for lack of trying.

I’m happy to say that my migraines are still much, much better.  I’ve had a few, but nothing like I was.   I haven’t had a lot of vertigo.  This past week I’ve had a few times where I’ve had really fast spins that last for just a couple of seconds, or very slow movement that I can barely see (but it makes me very nauseous).  Overall, I’m feeling healthier than I have in years.  I don’t know how long this will last, so I’m trying hard to make the most of this time.