First I would like to thank all of my contributors to the Meniere’s Treatments Series. I hope we all learned something (I know I did). I’m also hoping that this series will help those who are going through all of this understand that they are not alone. That not all treatments work for everyone, but there are many treatments out there and hopefully one will work for them.
Thank you to all who contributed, either through a guest post, or by commenting. This could not have worked without all of you.
It’s been a while since I posted about what’s going on in my life. So, on at the risk of boring you, here it is:
The biggest thing that is consuming my mind today is the trial against Paul Seelig. The man who is accused of selling bread as gluten free when in fact is wasn’t. I have to testify against him on Thursday. This is just so hard. I don’t want to see this man again. I don’t want to relive what he put me through. I read a post on Facebook by a woman who was at the trial yesterday. They were selecting the jury. She said that he kept chuckling. What could possibly be so dang funny? She also said that many potential jurors said they couldn’t be impartial because what he did was so horrible. Hmmm, what about innocent until proven guilty. I mean I know he’s guilty because I was there, but if I wasn’t I don’t think I could say that.
Of course, that is what I said the whole time all of this was going on. People were saying they were getting sick from the gluten free bread this man was selling, heck I was sick. But there was only a few people, and I thought I was sick from Meniere’s. I felt that people were publishing things on their blogs about his selling bread as gluten free before they really had any proof. Plus, he kept telling me that he was setting up a time for me to come in to his bakery and be there when he had testing done, so I could witness it. He even applied with the Gluten Intolerance Group to have his facility certified gluten free. I kept thinking, why would he do this if his products were in fact not gluten free.
However, even if he was guilty (as I now know he is) I felt that it was irresponsible for people to be publishing this without proof. And I didn’t feel like a home gluten test was enough. After all, we wouldn’t know if it was cross contaminated or not.
But the sad fact is, I believed him. He told me that he sold to the government and to hospitals. He said he only sold to the public because he wanted people to be able to have good gluten free bread.
I look back at the emails we wrote to each other and I feel so very stupid. Why did I believe this guy? I think I just couldn’t believe that anyone would purposefully contaminate people. And how could he be so stupid that he didn’t think he would get caught? He was making people sick, did he think they wouldn’t eventually put it together? I fell so betrayed. He must really have been thrilled to have had someone who was so gullible on his side.
Ok, enough about that. I’ll let you know how it goes after I testify, and then after the trial is over.
I have some good news. I was fitted for hearing aids last week. I will be getting them on the 8th. I’m very excited. Think of all the things I’ll be able to hear, that I can’t hear now. hehehe.
The fructose intolerance diet is going well. I saw the nutritionist on the 23rd. She put me on a pretty strict fructose elimination diet for 4-6 weeks. Then after my body starts absorbing nutrition again, I can try to add in new foods and see how I do. Right now, I’m doing so much better. No GI upset. I did have a little of one thing on my NO list, and I got so bloated, and gassy. Then within an hour I had a horrible migraine. I’m really hoping that once I get this food intolerance under control I will stop having so many migraines. (one can hope right?) According to our scales, it looks like I’ve lost about 2 pounds this week. Oh, I forgot to mention, the nutritionist told me I’m not eating enough. I’ve been trying to eat more calories since I saw her, but it’s really hard for me.
I joined Spark People, an online weight loss community, so I could log everything I eat and keep up with my symptoms and my calories. If you happen to be over there, look me up, my username is ONEARTSYCHICK.
One more piece of news. Stuart and I are starting classes on April 5th, to become Foster Parents. I may need a lot of advise from you who have children. Wish us luck!
As you can probably tell, the patches are still holding, and I’m not having any vertigo, and the disequilibrium is gone. Hearing is stable.
My hip is bothering me much more. I’m sure it’s because I’ve been doing more. But it’s a real pain….literally. I’m also having more trouble with the pelvic pain, I’m sure that’s because I’ve been feeling a little more amorous lately, since the world stopped spinning. However, just because I know why these things are bothering me more doesn’t mean it should be that way. I should be able to walk and not hurt, or have sex without pain. One thing at a time. Perhaps I will get there.
What’s going on with you these days?