A friend of mine, who is also going through having Idiopathic Intracranial Hypertention,because of her pregnancy. (Hopefully, her’s will go away after the baby is delivered.) posted this on Facebook for me…..I thought you might like to see it, but truthfully, I had no idea how add a video to my blog.
So I asked one of my blogging buddies who puts videos on her WordPress blog all the time and is going to school for IT stuff. (Thanks Fiona) I hope it worked!
(I must confess, I thought I’d already posted this before I got her instructions and you would have just gotten a link to the video. Then I looked today, and there it still is, unpublished! Ha! How lucky! Now you can see the video embedded in the blog. It is very well done, and not terribly long, I hope you enjoy it.
I read something about Idiopathic Intracranial Hypertention last night, and I had a light bulb moment. They used to call this, a pseudo tumor. Because it acts like a tumor. I heard that but it didn’t really sink in as to what it meant. Then the doctor, who I was reading explained, it causes the same symptoms as a brain tumor. I thought, “Oh Shit!” This really isn’t good. A friend of mine had a brain tumor, she really only had horrible headaches then they took it out through her nose! She’s doing great now! I thought….I’d rather have that. (then I felt kind of guilty. But…ummm, if her’s never comes back, she got off a bit easier don’t ya think? I’m sure she’d agree, I know she would actually.) I am such a bitch lately. But I do love this friend, she has been a good friend to me through all of this and I didn’t mean I’d switch with her, I’d just like to have something easier to cure. Or be able to cure at all!
But there are options, I’m in good hands. Called Dr. Kaylie’s office today, well Stuart did. and he said if I needed a shunt I’d be getting an LP shunt. Meaning it would be attached at the Lumbar Puncture site, not to my brain, so it would not interfere with the cochlear implant. So I will never be completely deaf! Whew! One thing less to worry about.
Stuart also asked about disability, Dr. Kaylie said to just send him the paperwork. My psych. said the same thing. I think I might have a chance at this. A vestibular specialist, a psychiatrist, a neruoradiologist, and a neurologist…and possibly an orthopedist all saying I can’t work. Someone should listen. But I was just looking at the paperwork, and it asked, what date I could no longer work. Heck, I don’t know. When I finally completely stopped working, it was because Stuart got a job in California. I had gone from full-time to a part-time job where I only worked 15 -20 hours a week, and made my own hours. I also went from being a Custom Picture Frame Shop Manager to merchandising greeting cards. Because that was all I could do…and it hurt like hell. I was already having trouble with my hip, and had to quit my framing job because of the Meniere’s. So when we moved to CA, we decided I’d just pay attention to my health. Then I was never able to go back to work. I tried one Christmas to work in a retail store a couple of days a week. I lasted 3 days and couldn’t stand after that for over a week. I had surgery shortly after that. So what date do I put down? When could I no longer work….what magical date? I kept trying and trying damn it! Hell, just last year I worked for 1 week answering the phones for Stuart’s job, but I couldn’t even do that now.
Stuart’s ready to ask a lawyer to handle the whole thing, but that can get expensive can’t it? I don’t even care about the money. I just want to have the label. That sounds kind of sick. But there are advantages through the ADA and other organizations if I am officially declared disabled. Plus, I need to accept it. The money would be helpful. don’t get me wrong, but right now, there are more important reasons I need to have this done.
I have really begun to hate WordPress.
There is a button at the top of my screen, “Congratulations, you win the prize! The chance to take our 5 second survey : )” so I clicked it….It asked if I would reccommend WordPress to my friends and family, I said 0 – Not on your life…it comes back saying I’m not an authorized user for this Dashboard. What? I’m using the Dashboard! You )%(%*^&$. I went to the Users tab, and I’m the only authorized user? What do they want? That’s just strange.
I can’t get any Theme to look like I want.
They want me to PAY to change the size of my Font! I didn’t realize this before, but now that I’m visually impaired, it makes a difference. (and it’s killer to read white on black now, I see gray on Black and it’s very hard, I had to change my other blog.) I feel horrible, some blogs I’ve been reading a long time, now, it’s so hard. There are some I can still read, but I can’t read their side bars. I guess that’s OK. I used to love a black background. Heck, my Create To Heal blog still has one. But since the font is so big and a bit yellow I can still read it, but I may have to change it.
I want to say right now!! IF ANYONE HAS ANY TROUBLE READING MY BLOGS, PLEASE LET ME KNOW. I WILL GLADLY CHANGE THE COLOR AND (IF I CAN) THE FONT OR FONT SIZE) I am writing to WordPress today about my concerns about the font sizes. I do not like that I have to hit Control + to make my screen bigger so I can read my own blog!
I’m not happy with the look of my blog right now.
Not cute enough.
Not Wendy enough.
But I don’t want to change from Word Press, I’m afraid I will lose my followers…and those who are just now finding me through the WEGO Health Activist thingy.
what to do.
WordPress, really wants me to pay for everything. I can’t do that.
I’ll figure out something. I’m sure I will, I’ve come up with some kind of cute looks. We’ll see.
Hope to surprise you with a new look soon!