Surgery went well. I had an Endolymphatic Sac Enhancement Surgery. After much searching, I found that different doctors do different surgeries and call it the same thing. Basically had a Mastoidectomy. (surgical removal of the mastoid process) with extra stuff. Dr. Kaylie removes more bone so the sac can decompress (on its own) and will have more room to expand. Leaving the endolymphatic sac and dura with no bone covering it. However, most of this is under your ear, so it’s pretty protected.
Hopefully, this surgery will stop 70% – 90% of the vertigo caused by this ear. I had this surgery on my right ear in April of 2010, it appeared to work. But since I’m bilateral, sometimes it was hard to tell if my vertigo attacks were caused by my right or left ear. Sometimes I could really tell, but since my hearing has diminished so much, and the tinnitus has gotten so much worse all the time, it makes it harder to distinguish.
I got home about 7:30pm. Had to be at the hospital at 11:30am, surgery was to begin at 2pm, but it was delayed until after 3pm because they had to give me a pregnancy test. I told them there was no way I was pregnant even explained that because of my hip issues, we haven’t had “intercourse” in a very long time. They asked again, how I could be sure I wasn’t pregnant. I told them, “let me put it this way, there has not been a penis in my body for months, because of my hip pain, we get creative, but we haven’t had intercourse. And I haven’t skipped my period.” (they considered giving me a test anyway, but I peed right before they took me back, and since I hadn’t drunk anything for about 14 hours, there wasn’t any to come out.) The nurses accepted this, but come to find out, if you are of child-bearing years you must have this test, hospital policy. So I squeezed out some urine for them….and we waited….and waited for the lab to do the test. So that delayed the surgery, luckily I was his last for the day so it didn’t put anyone behind.
When they decided I just had to have this test, Stuart joked, “Well, if you are giving birth to the messiah we want to make sure we don’t cause him to have birth defects.” Only, Stuart would come up with that one!
Before leaving the hospital they did have my pain under control, but I was hurting quite a bit shortly after we got home. I was sick to my stomach, (lot’s of anti-nausea medication), and pretty dizzy. I slept some, but I woke a lot because of the pain. I don’t think I took enough pain medication until about 4am. Finally, it started to work. I’d wake up in a few hours, and take half of a pain pill, this seems to have kept things under control. One thing that was odd, I had this horrible taste in my mouth I just couldn’t get rid of. Tasted like plastic and medicine. I swear I tasted that same taste as they were putting me under. I don’t remember this ever happening before. It was gross. I’m also having some crazy post nasal drip, and a cough. Of course, my throat is sore from the breathing tube, but it’s better today too.
That big cup they put on my ear, filled with gauze and stuff, I swear it causes more pain than the actual surgery. There was too much gauze and it pressed on my ear. When you have a hole drilled in your head about the size of a 50 cent piece, you don’t really want to feel something pressing on it. Thankfully, we got to take it off today, I removed all the stuff from inside, ewww, and just put a little packing back in, now it feels better, and I can sleep with out the worry of rolling over on that ear. They said I could just take it off, but the ear will drain for some time.
I have a tube in that ear, so the drainage comes out the ear a lot. This is actually an advantage. My Eustachian tube is very sore, so I know it’s handling a lot of drainage too. If I didn’t have the tube I think I’d have a much harder time with vertigo and pain.
My main nurse during pre-op, Janice, was amazing. She was so caring, compassionate, and professional all at the same time. She looked pained to hear what I had been going through. I told her one of my mottos, “Life isn’t what I expected, so I’m just changing my expectations”. I didn’t say this to be profound our anything, I said it to let her know, I’m OK with things. Yeah, it’s hard, not what I expected, but I’ll make the most of what I have. She was really stuck by this. She said everyone could learn from that, so many people get caught up in the what if’s and can’t get past it to see what they still can be. Right before I went back, she patted me on the arm, wished me the best, and said that she was going to remember to change her expectations as things change.
I was so humbled, and touched.
They had a hard time getting in an IV, one nurse tried, and even though she gave me lidocaine, it really hurt and it wouldn’t go all the way in. Janice came in and took over, she had a hard time finding a vein, I remember telling her, I wished I could help. She told me I was such a good patient. She soon found a vein, and I didn’t even feel her stick me! Amazing. (about IV’s, I had another one in my other arm when I work from the surgery…wonder why? I’m very glad I was out for that one, it was inside my wrist, a very painful place to get an IV.)
Everyone was very nice to me, and very professional, but Janice was exceptional.
Now, I’m getting tired, and a bit nauseous. I’m thinking all this drainage, and post nasal drip, is making me sick to my stomach.
think I will take a nap.
For now, all is well…I may be posting a lot during my recovery. I want to keep up with all my symptoms, so I may get a bit boring. I thought of keeping a written journal of it, or on my calendar, but I know I’m much more likely to come here, and talk.
Thank you all for so much support! You cannot imagine how much it means to me.